Showing posts with label misdiagnosis. Show all posts
Showing posts with label misdiagnosis. Show all posts

Friday, May 6, 2011

Psoriatic Arthritis: A REAL Diagnosis at last???

In January I was sent to a new rheumatologist. Dr Youngblood sent me for a series of xrays, blood tests, urine tests, and frankly that was January so I'm not sure what else! I finally had my follow up appointment today. She was very nice and spent a lot of time with me. She had immediately thought what previous doctors had misdiagnosed as rheumatoid arthritis, peripheral neuropathy, and other miscellaneous  diseases, disorders whatever, as an inflammatory arthritis. The tests were to determine what type. 

The test ruled out lupus, which was another doctor's first instinct, and after tons of research mine too. But, lupus is in the inflammatory arthritis family. The tests did not determine which type of inflammatory arthritis, but confirmed the existence of general inflammatory arthritis. Including inflammation, of course, bone spurs heavily in my feet, ankles, sacroiliac joints, spine, and knuckles. The ones in my hands aren't so bad but there is also the presence of osteoarthritis. The bone spurs in my spine are creating bridges and fusing my spine together. Nothing that sounds like any fun! Apparently my elbows are showing early signs of psoriasis, which is why she thinks it is psoriatic arthritis. If it is not psoriatic arthritis, she said it is something close. She says there are too many possibilities to maybe narrow the diagnosis 100%.
Dr Youngblood prescribed new medication. Meloxicam is a nonsteroidal anti-inflammatory drug used to relieve the symptoms of osteoarthritis and rheumatoid arthritis.Sulfazine EC is also an anti-inflammatory drug used to treat rheumatoid arthritis. Plus, I have to start taking flexeril 3 times a day for rib spasms, trust me those are no fun! I'm not sure what treatment happens for the bone spurs, but this is a start. I go back in two months.
So lets all cross our fingers (if you can) and hope first, this diagnosis is finally accurate, and, second that the treatment helps. :)

Friday, March 12, 2010

letter to Dr Robert Estupinan March 12, 2010


Dear Dr. Estupinan,
This letter is in regard to the certified letter you sent to me which I received on March 9, 2010 informing me  you will no longer to treat me as your patient, advising me I have thirty days to seek new medical attention, further you will only be available for emergency purposes during those thirty days.   When I read this letter, I immediately phoned your office and spoke with your nurse who explained to me “he does have the right to drop you as a patient if he feels your relationship has crossed the line” and suggested I contact Dr. Cuervo’s office, the neurologist you referred me to, and request a copy of the report he sent to your office.
I cannot begin to express to you my disbelief in what I have heard orally as well as, what I read in the report from Dr. Cuervo to you.  Dr. Estupinan, I have been a patient of yours for almost 2 years.  You have been treating me for my Fibromyalgia, Thyroid, Diabetes and Neuropathy.  You have me on a regular regiment of the following medications; Neurontin, Cymbalta, Vicodin, Synthroid, Metformin, Flexeril, Xanax and Phenegran for all of the above health problems and I do not have a clue as to why you would drop me from your roster. 
I was referred to see Dr. Cuervo for the neuropathy and the continuous joint pains that are getting worse and affecting me where I have lost feelings in both my hand and legs. When I saw Dr. Cuervo, I immediately liked him for the same reason I liked you, he is very direct, however, some of his remarks were insulting and with prejudice.  Without him asking me any questions, he immediately discussed my weight and how I need to have the lap band procedure done and how I eat too much.  I am willing to have the lap band, but I do have to wait until August. Again, he did not ask me what I ate that day, what I ate the night before. I am actually not a big eater, I eat the wrong things, and I understand that.  admitted, which I found incredibly hard to do, I do not know how to lose weight in the hopes he would recommend a nutritionist or dietician. In fact his report stated he advised me to eat a diet of fruits, vegetables, low fat milk…. This is untrue, instead he said to me “Stop eating, no one ever came out of a concentration camp overweight.”  Never in my wildest dreams would I expect such poor professional treatment and lack of professionalism from a doctor to a patient.  People are not just prejudice towards color, and the comments he made about my weight and the concentration camps were so insulting and very much taken to my heart.  Some of my family is Jewish, their relatives were in a concentration camp,  escaped with one of their children and the three other children were killed so yes, this touched home very much and not in a good way at all and I cannot just accept this behavior.
Dr. Cuervo advised me the EMG test I was given at Watson Clinic by Dr. John A. DiLullo showed no neuropathy. I feel like I have been getting the run around and after this new information from Dr. Cuervo I do not understand how I have been diagnosed with neuropathy and been giving medication for neuropathy, first by a pain management doctor; Dr. Pruitt, and confirmed by the neurologist, John A. DiLullo. Aren’t Dr.’s DiLullo and Cuervo reading the same test results and how do they both find different answers and where does your professional opinion come into the picture?  Instead of continuing to work with me on the problem, and knowing I have taken all of Dr Cuervo’s suggestions, I plan to have the carpal tunnel surgery in August. Dr Cuervo advised I was wearing the splints too tight, that’s why they were hurting, so I wear them now looser, and they are fine. He also explained about the morning testing, why it is important, therefore I have been testing every morning, and keeping a log. His assistant asked me about the CPAP and I explained I have problems with my sinuses which the CPAP increases. Dr. Cuervo didn’t mention the CPAP to me, but his assistant said I should speak to you about alternatives, which I planned to do.
Since I have seen you I have shared a lot with you regarding my life and how my physical problems have deteriorated my quality of life.  I always thought we maintained a very good rapport and I can’t begin to tell you how many people I told about you.  I could have really given up, but I didn’t. I am doing everything I can, but I am also limited by insurance at this time.

Respectfully,

Michele Kellenbenz

Cc: CEO - Jack Stephens; CIO - David Henson; President - Scott Swaggert; Board Member - Elisabeth Dupont; Partner - Annette Barnes; VP - Robert Buccino; VP - Robert H. Chapman; Dirctor of Clinical Services - Elaine Bertles; Executive Director - Louis Saco; Medical Director - Helen Mahias – Cherry; Human Resources Manager - Angela Rossiter; Manager of Patient Relations - Shane Turner; Neurolgist - Dr. John DiLullo; Pain Management Dr. - Dr. Michele McPhail – Pruitt; GP - Dr. Robert Estupinan; Neurologist - Dr. Herminio Cuervo