Showing posts with label diabetic peripheral neuropathy. Show all posts
Showing posts with label diabetic peripheral neuropathy. Show all posts

Wednesday, December 22, 2010

I WON!!!!

So a few days ago I was out walking the dog, and grabbed my mail from the box. A typical day, right?? NO! I received a letter from a return address of SSA ODAR. I almost dismissed it as junk mail. Upon further inspection I found several pages of legal jargon of which I understood few words. I thought I understood the following words though..."Fully Favorable". Now, this couldn't mean what I think it means, could it? I mean I ONLY applied 2 years ago and I haven't even had my court date yet. However, I do remember my lawyer saying something in October about asking the judge for a directed decision. Before I start assuming what this means, and jumping up and down, as obvious as the meaning seems, I decide to call my lawyer.
The lawyer's assistant confirms this does indeed mean I won, and without ever stepping inside the courtroom, yay me! Next, I conference called my husband and best friend to tell them. I could barely speak, I was crying so hard! Relief, affirmation, mostly relief.
In reading the judges ruling I kind of felt like the judge was saying "WTF are u wasting the courts time for?" and not to me. He cites my doctor's opinion, of course. And, he also cites the opinion of the medical examiner Social Security sent me to. Their own doctor "indicated that while there were some conflicting examination findings with regard to the claimant's neuropathy, the results of the nerve conduction study were compelling and highly reliable. Because Dr. Freeman reviewed all the available medical evidence of record and provided a detailed explanation with references to the evidence in the record to support his opinion, and he is a medical expert who is familiar with SSA policy and regulations, the undersigned grants significant weight to his opinion".
See, doesn't that reek of "your own freakin doctor said she is impaired, why'd you deny her in the first place???" LOL If that doesn't say it for you maybe this will... "The State agency medical consultant's (the people who read over your paperwork (or more likely DON'T read it) and deny you) physical assessments are given little weight because other medical opinions are more consistent with the record as a whole and evidence received at the hearing level shows that the claimant is more limited than determined by the State agency consultants." :) I love that. Other than the two words "fully favorable" those are my favorite words in the entire ten pages.
Don't you love getting your medical records and learning new things about yourself? For example, one of the specialists I saw said to me "what are they (as in my other regular doctors) doing for your B12 level being so low?". I said "it's low?". end of subject with that doctor. But, I did notice in all this legal mumbo jumbo of paperwork it mentions "the undersigned finds that the claimant's impairments medically equal listing 11.14 and 11.16." Of course I had no idea what this meant so I used my favorite search engine, Google, and, well, Googled it. These are listed in what they call "disability pararegs". 11.14 is for peripheral neuropathies. 11.16 is for Subacute combined cord degeneration (pernicious anemia). So nice for my doctor's to tell me about this, LMAO. I am not worried about it, it doesn't sound like anything big deal, although it is listed in the pararegs as a condition for which you can get disability, so that implies it might be something I want to mention next time I go to my doctor.Right now though, I am just to happy.
I'll have to expound on this more later as my fingers are really starting to not only ache but have bad sharp pains, and my knuckles are really swollen. I am so going to pay for this post, but to tell you I won, it is almost worth the pain.

Saturday, September 11, 2010

Still a Medical Mystery

The other day I went to a new orthopedist. One who specializes in the spine and discs. He took more xrays and also looked at my MRI. He said the odd thing is the MRI shows nerve entrapment from the bulging discs in my neck on the right side, so there could be pain there, but there isn't. Yet, on the left side, which is extremely painful... neck to shoulder, back, down arm, elbow, yeah all... there is NO nerve entrapment. Nothing on either the MRI or Xrays to explain the pain. So that's still a mystery, and it's causing carpal tunnel in my left wrist.
You know when you go to the doctor and you fill out all that paperwork you have to list what is wrong with you? IE diabetes, fibromyalgia, sleep apnea, MYSTERY UNDIAGNOSED HAND AILMENT :). Yes, that is what I wrote on the form.
So, I wait. 6 or 7 weeks then I see my new rheumatologist. In the meantime, I am really looking forward to starting this aqua exercise class at the rec center by my house. Unfortunately it only goes through Sept 30th. But maybe after I will start their tai chi class. As with anything either class will require me to take it EXTREMELY SLOW. Heck, by the time I am able to complete the entire aqua class it will be over. Oh well, at least it's a start!

Thursday, September 2, 2010

New Blog & Giveaway

I have what I hope is exciting news. I have started another blog. 1001 Recipes You Can Create with a Rotisserie Chicken. I hope you are as excited as I am.I like to cook. I like chicken. I like to make things easy... ok, I like to CHEAT. Seriously though, if I can buy an entire rotisserie chicken from Sam's Club, or my grocery store for $4.95 why shouldn't I shorten my prep list and time? Let's face it, most places these days you can buy a fresh rotisserie chicken for the same price, or less, as buying a whole chicken, or worse, boneless skinless chicken breasts.

So, this is my experiment into how many real recipes I can make using store bought rotisserie chicken. I say "real recipes" for one reason, and I don't mean to be knocking anyone, but during my research for the site I came across a cookbook that had to do with cooking using rotisserie chicken. At first, I was disappointed thinking, oh someone has already done this. As I read, though, I found quite a few of the recipes were simple. A simple recipe to me would be a chicken quesadilla. Remove the chicken from the bone, heat slightly. Put some of the chicken on a flour tortilla, cover with cheese. Fold the tortilla in half and brown in a hot pan. I'm not saying that's not delicious, because add a little salsa and you've got a winner with me any day of the week! Still, as delicious as that is, I wanted to make more substantial meals. 
The first recipe you will find is my Chicken & Yellow Rice. Trust me when I say it is a huge hit, and everyone I make it for loves it. On this particular recipe I used Vigo yellow rice. Since I gave a specific ingredient I linked it to Amazon as I have friends who do not have yellow rice, Vigo or otherwise, in their grocery store. The price they have for 5 packages is reasonable, if the price wasn't reasonable I would not share it with you.
The second news I hope you will find exciting is the possibility of a giveaway! I have been contacted by the promotion team of cooking website and am hoping to be able to giveaway some prizes to my readers, wouldn't that be awesome?!

Friday, August 20, 2010

Big Day Nerves

Tomorrow is a big day, guaranteed no sleep tonight. Start the morning off with a spot mammogram. If you don't know what that is it's a magnifying mammogram (I had to ask :) ), then possibly an ultrasound. My husband has to work so my best friend is taking me. Probably better, he'd keep asking "what's wrong?" and say all the absolutely wrong things. He tries, and he means well. After the mammo I will send her off to work, then off to the neurologist for my mri and emg results... more fun. I'm hoping he will have a definite positive yes or no this is neuropathy or it's not and they keep looking. From the previous neurologist I know I will need carpal tunnel surgery, but that's ok, I just don't expect it to fix everything though. That may sound pessimistic, but it's not. My reasoning is because the pain in my hands is the same in my feet and toes, and I know THAT'S not carpal tunnel, lol.
oh well, I guess I should try to lay down for a little bit.

Wednesday, August 11, 2010

50 Fabulous Food and Recipe Links For Diabetics

A reader named Bobbie sent me a link to this article. I haven't had time yet to really delve into it, but I thought I would share anyway, it looks like there is a wealth of information.


As a nurse, you will definitely encounter patients with diabetes. In fact, according to the American Diabetes Association, over 23 million people in the United States have been diagnosed with diabetes. This doesn’t count all the people who haven’t been diagnosed or who are at risk for diabetes. Diabetics need special guidance when it comes to diet and nutrition. Luckily, the Internet has made it easy for diabetics to access healthy, delicious recipes as well as learn about their condition and the way they should eat. Here are 50 fabulous food and recipe links we’ve found around the ‘Net:
Diet and Nutrition Infromation
These websites provide general information on a proper diabetic diet. Learn about different types of diet plans that diabetics use to manage their sugar intake.
    1. Januvia : Merck’s Januvia website has good tips about healthy food for managing diabetes, as well as a recipe tool and favorite food analyzer. Free registration required to access some tools. 2. Simple Wins: Nutrition : The Bayer website has nutrition tips, healthy cooking videos, and other good resources for diabetics. 3. Tudiabetes.org : Tudiabetes.org is a great resource for anyone with diabetes, combining the wisdom of a large group of diabetics with excellent articles. 4. ADA: Food & Fitness : Learn about proper nutrition for diabetics on this website of the American Diabetes Association. 5. MedlinePlus: Diabetic Diet : Medline Plus’ website gives simple, easy-to-understand information about the proper diet for a diabetic person to follow. 6. X-Plain: Diabetic Meal Planning : The X-Plain interactive tutorial gives you tools and information on planning healthy meals. 7. Accu-Chek Connect : This page provides supportive information for diabetics who feel they need help with their eating habits. 8. MayoClinic.com: Reading Food Labels : This helpful article tell diabetics how they should read food labels in order to make the right choices. 9. Reader’s Digest: 10 Super Foods : This attractive slideshow features 10 foods that diabetics should incorporate into their daily diets. 10. BD: Fast Food Guide : BD Medical Supplies offers this extremely helpful guide to your favorite fast food restaurants from a nutritional perspective, so you can see just what you’re getting into. 11. Foodpicker.org : Foodpicker.org follows the guidelines of the American Diabetes Association in order to help diabetics make better food choices. 12. Buffet Tips For Diabetics : The National Institutes of Health offers this article to help people make the right choices when offers with a whole buffet of options. 13. Joslin Diabetes Center : The Joslin Diabetes Center offers great tips on keeping portions controlled, as well as other healthy eating strategies. 14. Joslin Diabetes Center: The ABC’s of Sugar Substitutes : With all the sugar substitutes available on the market, it’s easy to get confused. This article compares sugar alcohols and artificial sweeteners. 15. Mayo Clinic: Exchange Lists : Learn how diabetic food exchange lists work to help you stay on the right track with your eating plan. 16. Ready, Set, Start Counting! : An easy-to-read guide that teaches patients how to count carbohydrates in a healthy diabetic diet. 17. Diabetes Fact Sheet For Child Nutrition Professionals : This article provides guidelines for food service workers who work with children that may be diabetic. 18. MyFoodAdvisor : The American Diabetes Association provides this excellent website with tracking tools, recipe finders 19. WebMD: Diabetes Center : Learn all about the basics of a healthy diet for someone with diabetes. 20. The Exchange List System for Diabetic Meal Planning : The University of Arkansas Family and Consumer Sciences department provides this helpful guide to using exchanges for nutritional management of diabetes. 21. The Idaho Plate Method : The Idaho Plate Method is used to help teach diabetics about proper portion control and correct nutrition. 22. The DASH Plan : The DASH Plan is designed to help people who have hypertension, or high blood pressure. 23. Treatments For Hypoglycemia : This web page gives examples of foods and quantities of food you should eat if your blood sugars get too low. 24. Eating Healthy On A Budget : This page gives you simple strategies for planning your meals without spending too much money on food. 25. Fruits And Veggies Matter : The CDC’s website encourages people to eat their fruits and vegetables for better health.
Recipes For Diabetics
These links will give you access to thousands upon thousands of recipes for diabetics. Some websites rely on user-generated content, so the nutritional information may not be exact.
    26. Top 20 Diabetic Recipes : Allrecipes.com is the favorite website for millions of home cooks. On this page, view the 20 most popular diabetic-friendly recipes that have been submitted by home cooks. 27. Recipes From MyFoodAdvisor : This link features recipes searchable by calorie content, carbs, fat, and other nutritional data. 28. Diabetic Gourmet : Diabetic Gourmet Magazine has literally thousands of diabetes-inspired recipes in every category from appetizers to desserts–even breads! 29. MayoClinic.com Diabetes Meal Plan : Delicious recipes featured on the Mayo Clinic website included chipotle-spiced shrimp and almond-apricot biscotti. 30. dLife : dLife has a selection of hundreds of “diabetic-approved” recipes that you can search by carb content, main ingredient, course, and other options. 31. Type 2 Diabetes Guide on About.com : The Type 2 Diabetes Guide on About.com has links to several different recipes for your enjoyment. 32. Diabetic Living : Diabetic Living, part of the Better Homes and Gardens network, is a site that includes many tips for healthy eating and recipes that sacrifice added sugar without losing flavor. 33. Bob’s Diabetic Recipes By Category : Bob’s website may not be pretty, but it sure has a lot of diabetic recipes! 34. Dave’s Garden : Dave’s Garden is a recipe site that has 72 user-submitted diabetes-appropriate recipes. 35. Diabetic Recipes : Over 800 diabetic-friendly recipes are included on this website, including menus for special occasions and foods that kids will love. 36. Kraft Good Eating, Good Living : This free website from Kraft gives registered users access to recipes tested by Kraft nutrition experts as well as money-saving coupons and recipe videos. 37. Meals For You : Meals For You has been providing over 6,000 nutritionally based recipes online since 1996. You can search meals by several different categories and view nutrition data for each one. 38. NewWellness: Crock Pot Recipes : This website has many diabetic-friendly recipes that feature a slow cooker. This way you can start dinner in the morning and have it finished when you get home from work. 39. CookEatShare : CookEatShare has over 1000 recipes for people with diabetes. Watch cooking videos and share your favorites. 40. EatingWell : EatingWell emphasizes the fact that diabetics don’t have to exclude certain food and they don’t have to sacrifice taste. By eating fresh, wholesome ingredients, they can eat healthy and feel indulgent. 41. ADA: Recipes : Access many delicious recipes that are sure to keep you eating right on the ADA website. 42. Food.com : At Food.com, you can find over 9,000 recipes that have been tagged “diabetic” by users. These have not all been reviewed by a dietician, so they are not guaranteed to be low glycemic. 43. ChildrenWithDiabetes.com : Cooking for kids can be hard in and of itself, but when you have to please a diabetic child, it can be even more difficult. 44. RecipeSource : RecipeSource has a wide variety of recipes for diabetics, over 700, in fact. Search by keyword to find your favorites. 45. Easy Diabetic Recipes : This page has a lot of advertisements, but it also has links to many recipes for diabetics as well as photos of the food. 46. Tasty Recipes For People With Diabetes and Their Families : This 31-page free eBook from the National Institutes of Health is jam-packed with healthy recipes, many with a Latin flair. 47. Recipe Trove: Diabetic : Recipe Trove features three decadent desserts that diabetics can enjoy in moderation. 48. Cooks Recipes : Cooks Recipes features over 100 recipes for low-sugar and low-carb breads and muffins on their website. 49. Dreamfields Pasta : Dreamfields Pasta has resources for pasta dishes that diabetics can safely enjoy. 50. OpenSource Food: Diabetes Diet : This website features good links to diabetic recipes as well as tips for diabetics who are trying to eat healthier.

Thursday, July 8, 2010

email: Post Stroke Nerve Damage

I received a lovely email today from a man who I will only say his first name is Ray. I have received several emails previously, from other people, and today I wondered why I'm not sharing them with you. Ray writes:


"Hi: 

I will be 60 next month and have had type 1 diabetes since 1 was 10. Up until 2 months ago my life had been fairly routine..well I had a heart attack in 1998 but fine since then. That morning was very routine.. but I passed out with no warning while turning on the TV and landed in a chair thankfully. Approximately 3 hours later I was conscious enough to know that I needed to call 911.. but I could not walk as my legs felt paralyzed. I crawled to the phone, crawled to the fridge to get some OJ while talking to the 911 operator and then had to crawl down 4 stairs and through the front hall to open the door for the paramedics.
They treated me for low blood sugar and by the time my blood sugar was up I was able to stand, although my calves felt like hard bricks.  I should have gone to the hospital then, but I declined, assuming it was a blood sugar related incident.
When I went to my doctor the following week he said it could have been a mini-stroke ( a TIA ).  I got a CT scan done..it showed nothing. I am still waiting for the MRI results to confirm or deny the stroke aspect.
In the meantime I have been enduring an off balance sensation when standing and I do not walk the same as I used to. A tingling,burning,and well some pain too, mainly in my back but also in my left leg and foot. I have gotten some physio and it seems to have helped somewhat. I am self employed and play trumpet in 3 bands ( well I did until this ). My back aches terribly if I try to play.
Some days are not as bad as others but I do feel frustrated and a bit inadequate as my wife looks after most things around the house now ( I can still mow the lawn on a good day but just slowly ). I still drive, work etc. but things are not the same. I feel as long as each day is marginally better that things will be okay."

I really admire Ray's positive attitude. To me, the tingling and burning sounds like neuropathy, but of course I am no expert. I have read though that 8% of stroke victims have nerve pain after a stroke, so post stroke neuropathy is not uncommon. 
I understand, and I'm sure if you are reading this and suffer from a debilitating illness you do also, Ray's frustration and feeling inadequate. Being unable to manage simple tasks you used to be able to do can cause severe depression and anxiety. For me, I have quite a hard time with anything that requires my hands, and let's face it EVERYTHING requires your hands, but especially fine manipulation. Things like removing the battery case from a cell phone, removing saran wrap from the roll, jewelry clasps, opening soda bottles are simply impossible. And, I drop a heck of a lot of glasses! 
As always, feel free to drop me a line at alonelydragonfly@aol.com & I will try to find some more of these emails and post them so you know you aren't alone.

Wednesday, July 7, 2010

Strawberry Salad Recipe

This salad reminds me of a family favorite. My cousin Marlene made it for a family picnic and it became an instant hit. Her recipe had a crushed pretzel crust and no pineapple but I believe the rest is pretty similar.(oh her's wasn't in a ring mold either)

1 large package sugar free strawberry jello
2 cups boiling water
10 ounce package frozen strawberries, no sugar added
16 oz can crushed pineapple in it's own juice (not syrup)
1/2 pint sour cream

Dissolve gelatin in boiling water. Add strawberries and pineapple, include juice. Fill a ring mold with half the mixture and chill for 30 minutes. Add layer of sour cream. Pour the remaining gelatin mixture on top. Chill until firm.

8 servings

Tuesday, July 6, 2010

Chicken Spread Recipe

I found this recipe in a diabetes cookbook. It reminds me of a chicken spread my Mother used to make once in a while when I was growing up. However, she used a whole chicken and put the chicken in a grinder attachment to possibly her mixer, but in a grinder, nonetheless.Then, the mixture was put in a loaf pan and patted down.

Chicken Spread
1 lb ground chicken
1 small onion, minced
1 tsp garlic powder
1 tsp basil
1/2 tsp thyme
1/4 tsp salt
1/4 tsp black pepper
1 tbsp apple juice

Saute the chicken, onion, garlic, basil, and thyme in a medium skillet over medium heat, until browned. Cool. Add salt, pepper, and apple juice. Mix well, using food processor or blender if a smoother texture is desired.Cover and chill for several hours. Serve on bread, crackers, or toast.

6 servings, 2 carbs

Tuesday, June 29, 2010

How to Cope with Sudden Illness or Disability by Martina Roe: Parts 6 & 7

6. Try to eliminate stress from your life
As we all know stress contributes greatly to many illnesses. Stress in small dosage is useful but on a large scale can be very negative.
When our body senses danger it prepares to flee in which case our heart rate increases. If we experience such states too often our health suffers as a result. The slower our heart rate the longer our life. Breathing exercises can help us calm down influencing our heart in a positive way. Take deep slow breaths to the count of 5.
Are you breathing properly? Let’s make a test. Stand or sit straight in front of a mirror. Take one deep breath and watch yourself.
Did your shoulders move up? Then you are not breathing properly as you are breathing through your chest and not through your abdomen. Now put your hand on your abdomen and take some more breaths. Can you feel your hand move up and down? Then you are breathing correctly. Try and practise this deep breathing exercise each day for a few minutes. You will then start to adopt such breathing automatically throughout the day.
If you find it difficult to sleep then deep breathing can also help you to relax and go to sleep. Sleep is naturally very important. Try to go to bed and get up at the same time each day ensuring that you have at least eight hours’ sleep.The need for the length of sleep will naturally vary from individual to individual. Try to free yourself from all worries or any anger, relax the hour before going to bed with a gentle music or a book, anything which will help you go to sleep better. Do not watch television just before going to bed and if at all possible, have your bedroom television free. Just think how parents put their small children to bed. They pamper them with a bath and once they are nice and cosy in bed they read them a bedtime story or sing a lullaby. We know it works for little children but we do not apply it to ourselves.
We should try and live in harmony with everybody else. This might not always be easy. I know myself that the relations in our neighbourhood are rather tense. When I consider my family there is always an argument of one sort or another going on. The neighbours in our road always fight for parking spaces, especially during the weekends. One day our neighbour could not find a parking space so she parked her car in front of her garage but at the same time blocked an entrance to our second neighbour’s garage. He did not like it and asked her to move the car. At the end they started to argue. The arguments ended up in violence with the police having to be involved.In such arguments it is difficult to judge who is to blame because both parties are equally guilty, but the lesson to learn is not to get involved in such arguments or learn how to deal with them constructively. If you are angry with somebody take a few deep breaths and explain calmly to the person why you are angry and what you would like the person to do instead. Do not swear at anybody or accuse them of being an idiot, the response you will be getting should be less hostile. Write down on a piece of paper something similar to the following quote.
“I can express my anger, irritability or rage politely and effectively. It does not matter who with or what the issue is.” Do not forget that if you can’t do so it is likely that you are constantly increasing your blood pressure which is not good for your heart.
Our neighbour has learnt a lesson not to park in front of the other neighbour’s garage. Sometimes it is better to avoid conflictive situations even if it means an effort. In the case of our neighbour it is the inconvenience of parking her car a bit further away from her house and having to walk slightly further. But then walking is healthy; she might even be doing something for her health. Actually she is doing rather a lot of walking at the moment because she was drink driving and had her licence taken away from her for a year.
When it comes to arguments and judging people I like to become non judgemental. Our neighbour no longer lives next to us but I have remained a good friend of hers. She has supported me incredibly well when I was at my lowest and all I am doing is praising her for that. She might have some faults but then we all do, and often it is impossible to put ourselves into other people’s shoes and understand why they behave the way they do. Before I had my own children I sometimes used to see children who were really naughty, full of tantrums in the streets, and could not comprehend how their parents could let them behave in such an awful manner. But when I had my own children I finally realised that even they have their difficult moments. In such situations I would say to myself that there must be others who are judging me in the same way as I used the judge the parents of the naughty children.
New information and communication technologies are making our lives easier and especially people who are not very mobile benefit greatly from these. But there are naturally some very negative features. As well as encouraging a less healthy and more sedentary lifestyles modern technologies take the human touch away from us. Children find it more difficult to interact with each other when they spend hours on the computer and many families now are deciding to have their home computer and television free as it makes their family lives more stress free. Children might resist such idea first but later they become more creative and can interact better with their parents, siblings and friends. It might be an idea to review your use of modern technologies and possibly restrict their use, if at all possible. It is always nicer to meet your friends in person than just send e-mails to them.
I have also found that prayers can help you have a positive attitude and keep you peaceful. They work very much like hypnosis; you believe there is some higher spiritual being that is helping you overcome your problems. As a child I grew up in Prague under the communist regime. At that time you were not allowed to practise your religion and only could do so in secret. My family went to Church on Sundays, but because discussing matters was also not on the agenda under the communist regime, I never quite understood the concept of God till I was in my teens. By then the communist regime was breaking down. Since then I believed sometimes very strongly but I also, like everyone else, had my doubts at other times. When I feel better, I believe in God strongly, but when I feel ill, I can doubt his existence. Yet I know this is somehow wrong. You yourself might be going through very similar mixed feelings. But I am always assured that God will be there for me even if I doubted him that he will forgive me and be there for me even though I might occasionally doubt his existence. I once assembled some prayers and put them on a website. One energy healer said to me that the prayer page was full of energy. His comment reassured me that with good intentions you would always be surrounded by positive energy.
I pray simple prayers every day, just keeping it simple, thanking God for all the great things he gave me, teaching me to get on well with everybody else, not to bear a grudge against anybody. I have learned that God is inside each one of us, but it depends on each individual how much we actually notice him. Praying is all about making you a happier, healthier, wealthier person. It can also help you go to sleep.
It is also well known that people who worship God regularly live healthier, longer and happier lives. It is often the social contact and support from church members that contribute to this happiness in great amount. But beware of sects, who in God’s name want to create evil, they recruit people and especially those vulnerable ones will say yes. If you know the Bible well and all God’s teachings the sect member will not bother you. I remember after the fall of the communist regime the Czech sects that were until then forced to practise in secrecy, were recruiting their new members. Once my father invited them in because he did not know who these people were. When the cult associates found out that my father knew the Bible well, they left very quickly without bothering him ever again.
Learn how to breath well and practise deep breathing exercises
Relax before bedtime ensuring you get enough rest, going to bed and getting up at regular times
Learn how to live in harmony by learning how to express anger in a constructive way
Prayers can help you to live a stress free live as well as giving you hope and believe in yourself.

7. You are the maker of your own luck


Right at this moment you might be thinking that it is not in your power to improve your life in any way. Let me tell you that even if you think you have very little left there is still so much strength in you which you are not aware of and that I would like to help you discover.
The main clue to success is to start small, giving you manageable goals each day that will build on each other. Break your tasks into smaller chunks if your challenge is slightly larger. Many people make the mistake that when they have a brilliant idea they think big and want to see success overnight. I would never manage to write these strategies in just one day, I get tired quickly and have to rest but at the end I shall complete it if I write a little every day.
My son thinks he will be able to swim easily to the other side of the river. When he is in the middle, however he has to return because he is out of breath. He will manage it one day but must pursue his goal and practise swimming each day a bit further.One day his stamina will improve to make it all the way. He also wants to write series for television. But he does not realise that before aiming so high he has to have small success first then work hard for the big success. He would be much better off if he considered entering competitions of creative writing for his age group first. But at this moment he can only see fame, he cannot understand he has to work really hard to get to the top.
It is therefore important to take one step at a time. If it is an effort for you just to get out of bed and make breakfast perhaps this could be challenge number one for the rest of the week to get up by a certain time. Gradually and slowly add a few extra challenges as you go along. A the end of each day or week make a review of what you managed to achieve that you could not do previously. You could perhaps keep a diary and set yourself some targets for the day and review them later. I find keeping a diary very useful with my son. As the majority of children of his age he finds it difficult to plan his homework leaving them often till the end when there is not enough time left. The diary helps him to monitor what he has done and what he still has to do but it gives him also this essential skill of planning and organising his day so he does not spend the whole day on the computer.Keep on reviewing your tasks and challenges and make sure that you do not set yourself too tough challenges which you then feel disappointed because you have not achieved them. Rather slightly adapt your challenges and make them easier, or if your tasks were too easy, set yourself more demanding goals. And do not be a perfectionist; it does not matter if the house is not absolutely 100% clean.I have got a friend who is always so worried about things going wrong when she invites her friends for dinner that at the end she is so stressed and exhausted. Friends are there to cheer you up, not to make you feel even more awful, they will most certainly not mind if everything is not absolutely 100% perfect. Do not therefore worry about things going wrong or that anything is not perfect.
If you want to work I believe you can find a job that suits you, will be enjoyable and will give you satisfaction. Ill or disabled people often feel depressed because they feel they cannot contribute to society as much as others. Companies are often discouraged from employing people with disabilities because they fear that such people will be absent regularly and not be as efficient as others suffering loss as a result even though by law employers must not discriminate against employees with disability. There is help at hand for you as there are organisations that will help you find a job that is suitable for you with training for the appropriate job. You might also enjoy other benefits such as reduced alternative therapy treatments, or start up money packages if you think of running your own business. Explore all that is available of which you can take advantage.
As mentioned previously it is important to think small.You might feel others have got an easy life and can prosper well without having to fight an illness or disability every day. First let me assure you that even the people who appear to have no problems can be flooded with them. I know you feel like you are a victim, but it is important to think of yourself as a winner or becoming one. Do not compare yourself to others. We are all unique individuals with different experiences, values or beliefs. If your neighbour was disadvantaged like you would he or she have achieved as much as you?
You might still feel uneasy about the whole situation saying you are too ill to do any work. That is exactly how I felt not so long ago. The nature of my illness is such that I would not be able to turn up for any regular work. I have so much skill and ability yet I cannot use it even though I very much want to do something. I started to think whether I could work for myself on a self-employed basis. This would mean I could work when I feel a bit better and when I feel unwell I can just take it easy and relax. I speak and write 6 languages fluently so I could possibly do translations. Everyone around me is discouraging me because they believe it is a job that is not very financially rewarding. Yet I am not discouraged and am determined to work hard for it; most translation agencies only accept people with 3 or 4 years experience. But that does not discourage me. I am in the meantime translating adventure stories my uncle published in Czech after his journey to South America into English and this should give me some experience in translation.If I were healthy, I would naturally aim higher. It is nevertheless a great challenge for me.
Do not look for any reasons which would be stopping you from pursuing your realistic coal. People manage to find all kinds of excuses for things they have not done and should have done. As I am writing these strategies my life is certainly not straightforward. Yet I believe that tomorrow will be a better day and I will be able to continue and help great people like you achieve your dreams and be happy. I know things were tough for me and it took me a long time to finally find the right path. If I had a chance to read something similar to the 7 strategies I would have appreciated it very much and I hope that what you are reading is beginning to change your life for the better.
It is important to go only at a pace you are comfortable with. While you are patient and waiting for your dreams to materialise you are obviously doing all the right things that will help you to achieve your goal one day in the future.
In the past I watched films, where people who were involved in accidents causing them serious injuries made an incredible comeback.I always used to admire their strength and wished nothing of that nature would happen to me as I felt I would not be able to cope with it.Yet without this incredible strength such people would have no life at all.People who are blind develop all their other senses much better than we do, otherwise they would have to live in total darkness and isolation. I just wanted to show you that this incredible strength is in all of you and you have the capacity to use it to improve your life and the life of those around you. And do not forget - it is those around you who also help you enormously to pull through your difficult moments. One lady who became ill said there was not point for her to live on because she could not do what she was hoping to achieve. She just started to work in a nursery and only recently completed her course. But her family assured her that there is live for her only if she remains positive and that they are there to help her pull through it. Even though she can no longer work and has to rely on her family to help her she is happy because her family are there supporting her, she keeps herself positive and focused and is very proud of her children who learned to help their mum as much as possible.
If you think there is no such strength within you to change live for the better I am going to prove you wrong. On one sheet of paper write down all the negative aspects of your life, on another sheet reflect on the positive ones. Weigh them all up. You probably wrote more negative stuff quickly while the positive stuff only came up very slowly. Never mind, this is all about appreciating the entire positive side of your life now. The negative parts are hard, but throw the negative sheet in the bin. As you do so, imagine all these problems are locked up in the bin now and when you take the rubbish down to be collected imagine they are going with all the other rubbish into the landfill site. Every time the negative parts re-appear in your life try to imagine them going into the bin and away with the rest of the rubbish.
Let us instead concentrate on the positive now. If you only managed to write down very little let me help you to think of some more. When you are not feeling too good, it is difficult to see all the positive side of your life. But do you have a supportive family, a circle of friends, can you read, write, have access to the Internet, can you walk or have enough strength to push yourself in a wheelchair? If you have some of these you will be able to pursue your interests – perhaps studying something you enjoy, you can join like-minded people on the Internet or you can write about your problems and share your experience with others. To write about what bothers you helps and you never know your articles might be great and appear on websites for which you will earn some money. Nowadays there are so many opportunities thanks to the Internet, especially for people who are ill and disabled and cannot go to work on a daily basis. I always felt people with disabilities were so much closer to God and artistically gifted – they have the time to notice little thingsthat busy people cannot. I am sure you have heard of artists who paint with their legs or their mouth and their paintings are truly marvellous. Would they have not had their disability they would probably get on with their everyday lives and they would never have discovered this special gift in them. There is a special gift in everybody and even you can discover it and make good use of it.
If you cannot continue in your current job or cannot achieve your career ambitions help those around you who will certainly appreciate your input or expertise. Or help those who are facing similar problems like you. If you have children help them to achieve their potential. They will appreciate it greatly and it will be a consolation to you that they will do well and may not only fulfil but also eclipse your hopes and dreams. Let them, however, decide for themselves what they would like to do.
If you stick with your realistic goal you will achieve it. Also do not always listen to your prospects that have been forecasted by doctors for the development of your illness. As mentioned earlier the same illness can behave differently in various individuals. If you were forecasted that it would probably be 3 years by which time you would be in a wheelchair do not fix it in your mind. Rather try to be positive and keep walking as much and as regularly as you can. The longer you keep it up, the longer you can do it. I have heard of people who were told by their doctors that their illness was not curable; however, they even adopted a different approach to treatment than suggested by their doctor and have cured their illness even though their doctor has given them only a few years of life.
You can achieve your goals
Think small; accept that you will have some bad days. Find ways how to overcome these and say tomorrow will be a better day
Break bigger tasks into smaller chunks
Stick up with your goal – do not give up
It is now exactly a year ago since I wrote 7 Strategies how to cope with illness and disability. Since then my live has improved even though the first 6 months of this last year were the toughest of my live. I am afraid during these 6 months I have completely forgotten about these 7 Strategies and somehow never believed I would ever get better. But I did, perhaps because unconsciously I had these Strategies in my mind.
In the last couple of months I even started to work as an Invigilator, something I never dreamed I could do a year ago.And I am also thinking of helping out at my sons’ school, I could use my skills and help perhaps some students prepare for their French or German exams. I am still thinking about becoming a translator one day but I have other very exciting plans as well. I see my life as very rich; I do so many different things I could not do if I had to work every day and doing the same thing over and over again must be boring. Well a couple of years ago I thought that being unable to go to work is the worst thing that can ever happen to anybody.
It is the belief which is very important. Just try to say the following in your head, “Life is very hard, life is very hard”. Then relax, take some deep breaths and note how you feel.
Now do the same exercise again and instead of saying that life is hard, try and say something positive, such as, “I can take steps to make my life better and happier.” Now relax again, take a few deep breaths and notice how you feel.
I am sure you felt better when you kept telling yourself that you can take steps to make your life better and happier.
I hope that you found reading the “7 Strategies how to cope with illness or disability” enjoyable and useful and that over time some of these strategies if not all will help you to improve the quality of your life and make you a happier person. If you are in doubt about anything please consult your doctor, especially if you want to embark on any new exercise, diet or treatment regime. I wish you all good luck.

Monday, June 28, 2010

Good to be home

I have to tell you it's good to be home. You see in March of 2008 we moved to Lakeland so I could be closer to my work. Well, to the main location (aka Disney World), MANY more job opportunities there than at the satellite location I was working at. I had been having problems with my hands for months, increasingly so, but I had every plan on getting a diagnosis, fixing the problem and continuing on with my career. By the end of May I would walk into work, be there about 15 minutes and the excruciating pains in my hands would start, so I went out on medical leave. Assuming still I would get a diagnosis, and get back to work. November of that year I was diagnosed with the neuropathy and found out I would not be able to return to work any time soon so I let Disney know right away. But now we were stuck an hour from our home, friends, and families. My husband had a job there and I was working with doctors I thought could help. They didn't.
So this year, shortly after I was dropped by my doctor, an apartment came available in the duplex next door to my cousin. I have to tell you there were times in my life we were so close. I've told you about her before. We were close as teenagers, then when I moved back from Ft. Lauderdale I lived with her and her family, so we were close then also. But life happens and we grew apart. She's lived here, in the duplex, for 10 years. In fact, 5 of my Aunt's 7 children have lived in these duplexes at one time or another.
My husband and I had been considering moving back when our lease was up in March, but we decided to opt out and move back right away so we could take advantage of the duplex being available, and so I wouldn't have to start with a new set of doctor's in Lakeland, then move in a few months and start all over yet again.
Of course, this has caused some serious financial hardship. Money is always tight without me working. But, this is something else.
I am more active here, spending time with friends and family which is wonderful. Unfortunately, between the financial stress and being more active I have been in a severe flare for about 2 weeks. Exhausted, and hurting.I only will take my vicodin for break through pain, not everyday stiffness, but I feel like I have been taking more than normal. I'm not talking 4 or 5  a day, more like a whole one at a time and taking like 2 a day. This is a lot for me. The other day I took a second one about an hour after the first one, man was my head stoned, but I got rid of the pain, for about an hour.
Shoot, this was supposed to be a happy post... MY POINT WAS.... I'M DAMN HAPPY TO BE HOME IN SPITE OF EVERYTHING!!!!!

How to Cope with Sudden Illness or Disability by Martina Roe: Part 4 & 5 of 6

4. Learn how you can best help yourself feel better
Try and find out as much as you can about your particular health problem. Alternative therapies are a great way of harmonising your energy and the practitioners at alternative therapy clinics will be more than happy to advise you on which therapy would be most suited for you. The clinic might also run courses that will help you to apply some methods on your own. Naturally you will not be able to do everything. It takes practitioners of acupuncture years of study and practise before mastering the skills in their field and you would certainly not be able to apply any of the techniques on your own. You can, nevertheless, learn about acupressure or reflexology points and apply them regularly yourself. You can find out about which point corresponds to which organ in your body and which points would be more beneficial to press for you, how frequently and in which sequences.
I try to practise acupressure or reflexology on myself regularly and am quite amazed how much sensitivity or pain I can feel in the points that represent the organs of my body which are not functioning too well. I get also slightly excited that I am a bit of an expert on the subject. I feel it works because of the sensitivity of the points and I can help others to apply the same techniques. If you do not feel like pressing reflexology points on your feet you can just walk without your shoes on grass, on sandy or pebbly beach. In the past when people did not wear shoes and with no hard surfaces their feet were constantly massaged in the same way that the principles of reflexology healing work. Stepping over small stones is very beneficial because you activate and massage all the reflexology points at the same time. And there is so much more you can do to help yourself.
Learn from books or courses how you can help yourself (many local health authorities organise courses for people how to deal with any long term health condition)
Give the techniques which are recommended to relieve your particular symptom a try
Find out what works for you
Stick to the remedies or self help techniques which work best for you and be persistent (naturally follow any breaks which are recommended – for example you are always advised to have a break from herbal treatments in regular intervals).

5. Concentrate on the present, do not dwell in the past or worry about the future.
Have your caught yourself ever saying, “If this did not happen I would not get myself in the state I am in. I should have done things differently and so on?” Such claims might or might not be true, it does not really matter. What matters is that you try to ignore such thoughts because they will not help you advance in your life. You might be experiencing pain because someone has wronged you in the past. My sister keeps constantly reminding our mother how badly she brought her up and that she never had time for her, basically drawing attention to the mistakes our mother made. Some of these accusations might be true, others are not really justified but that is not important. What matters is that my sister should let go of these feelings of hurt otherwise she will always feel grudge against her mother and it will not help her advance in the relationship. In any case it is something, which happened in the past and can no longer be changed, so there is not much point trying to change it. If my sister really wanted to improve her relationship with our mother she should concentrate on ways how the relationship between them could be improved.
As a child I was sexually abused by my uncle, luckily for me he died when I was 14 years old. As I wanted to move on in my life I forgave him when he passed away, otherwise I would just live my life full of anger with images of what happened haunting me all the time. Such feelings of anger can sometimes completely dominate your life making you even ill. For your own sake it is important to let go of these ill feelings, this will naturally not be easy and you might need to seek help of a psychiatrist or a counsellor. But it is important to free yourself of any such feelings. You cannot forget but you have to forgive so you can live a happier and more fulfilling life. If you ever experience disturbing thoughts from the past you can keep saying to yourself. “What happened in the past happened, I let it go, I let it go, I let it go, I shall now put it behind me and concentrate on the present. There are good things for me to build on so I can achieve my dream one day.”
The present is the most important part of your life. Take a moment to reflect on how you feel. Can you experience the ‘here and now? Can you sit down for 5 minutes to be in a calm state concentrating on deep breaths without any thoughts spreading to your mind? Unless you practised this kind of meditation before I am sure you found this exercise difficult. Meditation techniques are very beneficial because they help us discover more who we are. That is not an easy matter in today’s extremely stressful society.
Reflect now on the thoughts, which were springing into your mind. Did you worry about your problems for which you have no answer? This is completely normal. As a result of your illness or disability you might have less power to influence matters in your life. I myself often worry what will happen to my children, or what if my illness deteriorates quickly and so on. But such worries are useless; they will only make my life more difficult and I am learning not to worry about anything that might go wrong in the future. Worrying only helps us to let our worries come alive. Mothers often worry about their children being cold or catching a cold and would not let them play with cold water. Children often feel warmer than adults and it is therefore better just to take a jumper with you rather than forcing them to wear it. The funny think is that if children catch a cold in the majority of cases it is not because they were cold or got wet (even though this might increase their chances of catching a cold). Usually a virus spreads around and everybody has it at the same time.My husband always complains about rain, yet it is his hostile attitude towards rain that makes him more uncomfortable than the rain itself. At the end of the day a bit of rain that we can feel on our bodies is only beneficial for us in the same way as walking barefoot in the wet morning grass.
I know and have accepted that I shall never live into my nineties as my grandmother did but then what does it matter. I am hypothesizing about something, which would be happening a long time away from now. Instead I rather concentrate on this very moment making sure that I am enjoying life to the full, that I give the right support and guidance to my children and that I can see them grow into responsible citizens. Even though your life is or seems to you to be much harder than anybody else’s do not imagine it to be harder. In our actions we often follow what our mind tells us to do. Make sure you give it positive commands. Do not worry about the future, sure you want to plan for it and see where you are going. It is only positive to have a dream or a challenge for your future. Your dream can, however only be achieved if you set yourself little challenges which you achieve day by day.
Do not dwell in the past
Forgive those who have wronged you
Do not worry of what could go wrong in the future – just let anxiety and worry go and allow reality to happen instead
Do not believe things will end badly.


Sunday, June 27, 2010

How to Cope with Sudden Illness or Disability by Martina Roe: Part 2 & 3 of 6

2. You are not alone – make most of all help and support groups
Sometimes I take a lady from the neighbourhood shopping with me. Like me she has health problems, some of them are similar to mine.I truly enjoy talking to her.
We can complain to each other about our problems, we can learn from each other how we deal with our ailments, what remedies alleviate our symptoms or which alternative therapies are helpful. We share a common problem and I know she will not be bored. We can put ourselves into each other’s shoes easily. But I know that the rest of the world including my family will not understand or be interested in what I am going through. I have therefore learnt not to bring up the subject of my illness in front of others.
This might be difficult because you might want to share your problems with your friends but you do not want to bore them with it. It’s therefore better to think of matters, which are more cheerful and positive. Or just listening to your friends will do the trick - people just love to talk and will appreciate that you listen. At the end of the day if you recount to people how hard life is treating you, they will only tell you how much harder their life is.
Rarely might you come across somebody who understands and will be willing to listen to you but apart from these rare individuals you have to find those who will like to share their own problems with you. I have a friend who has health problems but never mentioned them in front of me. As soon as I let her know that I became ill she suddenly flooded me with e-mails, how she herself was not well and how she coped with it. Her normal messages of a few lines suddenly turned into long pages. She knew I would understand and that I would not be bored.
I first thought that there was nobody else who had to suffer in the same way as I do. It was only when I got to know my friend with similar health problems, I realised, I was not alone. I learnt there were others who had to endure similar difficulties. Sometimes they manage to cope well; other times they find it harder to cope. But they can be there to support each other.
It is therefore only to your advantage to join support groups and be there for each other learning from your strength. I know of people who complain of such groups not seeing any point in them. They argue that at the end of the day they still have to come to their own homes, being unable to pay for all their bills and having to cope on their own. Support groups will naturally not solve all people’s problems, but they can help people overcome some of the unpleasant sides of life.
It is important to appreciate all the help of the professionals who organise these support groups and put people in contact. You can either ignore them or make most of them. The choice is yours. When I was coming to terms with my new situation I was given a contact of a woman’s group. When I looked at the details I could see that this group was intended for women with mental health problems. Even though I was depressed I was not suffering from long-term mental health problems. I therefore ignored this particular group. Your own family members might sometimes not approve of you joining such groups. They might feel that you will just become absorbed with your illness thinking of nothing else and making yourself even more ill by analysing what you suffer or not suffer from. Do not look for your relatives’ approval. Instead decide what works best for you. Like with everything else in life take the middle route, do not go into extremes. Enjoy the support of your like-minded friends but only to enrich your life. Do not get stuck in complaints about your misfortune.Surround yourself with people with whom you feel great, avoid people who are distracting you from achieving your goal.
Try to be yourself; do not listen to criticisms of other people. And do not compare yourself to celebrities who look ‘perfect’. They only look perfect in magazines but they have real problems of their own.
You are not on your own, there are others with similar problems you can join forces with
Use the support of others in similar position like yours to enrich each other’s lives
Use the middle route; it is OK to complain about your position in the short term, in the long-term concentrate on the positive.
Feeling sorry for yourself will take you nowhere.

3. Nurture yourself
I have a question for you to which I would like you to give me a sincere answer.
Who is the most precious person in your life, who do you value most? Give it a thought before you read on.
Your partner, your child or perhaps your parent? Was this your possible answer?
I am sure all these people mean a lot to you otherwise you would not be naming them. But there might be times when even they can let you down.The only person you can always trust is you.I know it sounds funny but you will always be in your own company. You can either cheer yourself up or make yourself miserable. But first of all you need to take care of yourself and make sure that you can keep yourself as healthy as possible.
Naturally you cannot cure your illness or disability but you can learn how to live your live to the best - that is how to relieve your symptoms in the best possible way.
There is so much you can do to help yourself feel better. We are all different and not every remedy or therapy will help everybody with the same health problem. Take for example allergies – they all work on the same principle when the body starts to defend itself against substances which are normally not harmful, yet the symptoms can be so different ranging from runny nose, itchy or weepy eyes, sneezing, rushes, eczema and digestive problems to name the few. It is therefore understandable that some remedies will work for some but not for others. A lot of people have said they tried so many remedies or therapies and nothing ever worked. Some therapies take longer to kick in and it is important to be patient and observe the changes, which are happening to your body. Often the most effective self-help techniques are the easiest ones. Think for example of the time when you try to imagine throwing all your negative thoughts and all your pain into the bin and getting rid of them. This is known as a visualisation technique and you can imagine almost anything you wish; you can let your imagination work. Imagine yourself being strong, as a leader, as someone who can make it to the top of the mountain. Or think of yourself lying on the beach, sunbathing and the sun’s energy travelling into each part of your body making you feel warm and energised. You might be amazed that by imagining it you can actually get all the benefits of it happening in real life. You could also consider autogenic training, where you will learn to relax and it might even help you go to sleep if you are experiencing problems with your sleep.
Try and find something that you enjoy, develop an interest or a hobby. You might enjoy a good story or just a cup of tea can be nicely spent just on your own. It is much easier to work hard at achieving something for which others will say well done. It is much harder accepting that because of your illness nobody will say well done for something you really wanted to achieve but could not. Nobody will praise you for coping with your illness so say it yourself each day.
“Well done for coping so well.”
Praise yourself for any little achievement of the day no matter how small. If it helps put your favourite poem on the wall or any positive quotes to remind you every time you pass that place?
Were you more positive today than yesterday? Then I would like to congratulate you. I send praise to all of you.
Learn how to exercise can help you. The problem with exercise when you are ill is that you do not feel like it because you experience too much pain, stiffness or lack of energy. But it is often exercising that helps to alleviate stiffness or muscular pain. It is important to find the right exercise for you, gentle exercise is more appropriate than anything vigorous and the rules are little and often. Be persistent; do not expect any immediate results immediately. Likewise it is important that you follow a healthy diet. You should certainly not be embarking on any drastic diets to lose weight. Some of the diets to lose weight can actually cause havoc to your health. Very often people who lose weight after dieting gain it back sooner or later. This is actually more dangerous to your health than maintaining the same weight at all times; the body has to deal with the skin constantly expanding and shrinking when people lose and gain weight too often. It is important to eat regularly. Small portions more often are healthier than big portions less frequently. It is crucial that all the food groups (carbohydrates, fats and proteins) are included in your diet.In this respect please note that diets, which only involve one of the food groups, can be very dangerous for your health. And naturally always consult your GP if you want to embark on any new diet plan.
It is important to realise that you are the person who matters most
Make yourself comfortable and do something you enjoy each day
Praise yourself for all your little achievements
Follow a healthy, well balanced diet and if possible try to do light exercise each day.

**I want to note there is something I do that often helps me sleep. This may sound silly but if I am in pain and trying to sleep I tried to find a spot on my body that does not hurt , even if it's my knee or just my ear, and concentrate on thinking of that body part. I visualize it. Give it a try, what can it hurt? (pun intended)