Wednesday, December 22, 2010

I WON!!!!

So a few days ago I was out walking the dog, and grabbed my mail from the box. A typical day, right?? NO! I received a letter from a return address of SSA ODAR. I almost dismissed it as junk mail. Upon further inspection I found several pages of legal jargon of which I understood few words. I thought I understood the following words though..."Fully Favorable". Now, this couldn't mean what I think it means, could it? I mean I ONLY applied 2 years ago and I haven't even had my court date yet. However, I do remember my lawyer saying something in October about asking the judge for a directed decision. Before I start assuming what this means, and jumping up and down, as obvious as the meaning seems, I decide to call my lawyer.
The lawyer's assistant confirms this does indeed mean I won, and without ever stepping inside the courtroom, yay me! Next, I conference called my husband and best friend to tell them. I could barely speak, I was crying so hard! Relief, affirmation, mostly relief.
In reading the judges ruling I kind of felt like the judge was saying "WTF are u wasting the courts time for?" and not to me. He cites my doctor's opinion, of course. And, he also cites the opinion of the medical examiner Social Security sent me to. Their own doctor "indicated that while there were some conflicting examination findings with regard to the claimant's neuropathy, the results of the nerve conduction study were compelling and highly reliable. Because Dr. Freeman reviewed all the available medical evidence of record and provided a detailed explanation with references to the evidence in the record to support his opinion, and he is a medical expert who is familiar with SSA policy and regulations, the undersigned grants significant weight to his opinion".
See, doesn't that reek of "your own freakin doctor said she is impaired, why'd you deny her in the first place???" LOL If that doesn't say it for you maybe this will... "The State agency medical consultant's (the people who read over your paperwork (or more likely DON'T read it) and deny you) physical assessments are given little weight because other medical opinions are more consistent with the record as a whole and evidence received at the hearing level shows that the claimant is more limited than determined by the State agency consultants." :) I love that. Other than the two words "fully favorable" those are my favorite words in the entire ten pages.
Don't you love getting your medical records and learning new things about yourself? For example, one of the specialists I saw said to me "what are they (as in my other regular doctors) doing for your B12 level being so low?". I said "it's low?". end of subject with that doctor. But, I did notice in all this legal mumbo jumbo of paperwork it mentions "the undersigned finds that the claimant's impairments medically equal listing 11.14 and 11.16." Of course I had no idea what this meant so I used my favorite search engine, Google, and, well, Googled it. These are listed in what they call "disability pararegs". 11.14 is for peripheral neuropathies. 11.16 is for Subacute combined cord degeneration (pernicious anemia). So nice for my doctor's to tell me about this, LMAO. I am not worried about it, it doesn't sound like anything big deal, although it is listed in the pararegs as a condition for which you can get disability, so that implies it might be something I want to mention next time I go to my doctor.Right now though, I am just to happy.
I'll have to expound on this more later as my fingers are really starting to not only ache but have bad sharp pains, and my knuckles are really swollen. I am so going to pay for this post, but to tell you I won, it is almost worth the pain.

Thursday, September 23, 2010

When All Else Fails There's Always Twilight

I caved. I finally made an appointment with the psychiatrist my doctor recommended three months ago. I can't turn off my brain to sleep unless I am exhausted. Other times it's not my brain, I feel like my skin is crawling or I'm uncomfortable in my own skin. I'm up and down 3, 4, 5 times. I will lay in bed with my eyes closed, sleep mask on, snuggled up to my dog (she's a living breathing teddy bear)for hours. Then I get up and watch a half hour, 45 minutes of tv, lay back down. Next time I grab a book and read for a little bit, then try again. Last night while the world slept I vacuumed the air vent for the air conditioning unit, trimmed the cat's claws, sketched two pictures, watched a couple of youtube videos on how to paint flowers, practiced those techniques. I laid down and decided I had to work on my Christmas shopping list. Then, I laid down and decided I needed a better way to keep track of our bills. I tend to forget to pay something and then get a late payment and all of the sudden we are behind, which is what we are doing right now... playing catch up.
Plus, when I'm manic like this the house is a disaster. I'm in creative mode so EVERYTHING else is... well, forget about it. The coffee table in my chick den is covered in water bottles, paints, sketch books, etc.
Another thing, I put on Twilight because it's the one movie I can sleep to. In fact, it puts me to sleep. Something about the background music just lulls me. But, then I put my Twilight on and it blocks out my brain and my fingers start twitching. Now I am up again writing this and watching my soaps. It's 11 am and I'm so exhausted, feel sick from no sleep but wondering if I should just try to stay awake till at least 6 p.m. so maybe I will get turned back around or if I should try to sleep again.

Sunday, September 12, 2010

can fibromyalgia make you feel crippled?

Blogger or blogspot, has a neat new utility called stats. I can see how many people have read my blog, where they live in the world, even what site they used to get here, what operating system they use, and, if they use a search engine like google, what words were searched to find my blog. Pretty, cool, huh?
My point of course is I was looking at this new plus and discovered a reader had found me through google by researching the words "can fibromyalgia make you feel crippled?". The answer is hell yes. And, if not crippled, certainly a hell of a lot older! If you have fibromyalgia I would be surprised to hear you haven't had a flare that made you feel like you were in the worst car accident of your life; aching, tender, feeling like your entire body is one giant bruise even though there is no discoloration, so stiff you can barely move, can barely keep your eyes open, if you can at all. Exhausted, but unable to sleep due to the pain.
I feel like the editor of the newspaper who wrote to the little girl "Yes, Virginia, there is a Santa Clause". Unfortunately then, the answer is "yes, fibromyalgia can make you feel crippled". Luckily, the debilitating flare will subside, it won't last long.

Saturday, September 11, 2010

Still a Medical Mystery

The other day I went to a new orthopedist. One who specializes in the spine and discs. He took more xrays and also looked at my MRI. He said the odd thing is the MRI shows nerve entrapment from the bulging discs in my neck on the right side, so there could be pain there, but there isn't. Yet, on the left side, which is extremely painful... neck to shoulder, back, down arm, elbow, yeah all... there is NO nerve entrapment. Nothing on either the MRI or Xrays to explain the pain. So that's still a mystery, and it's causing carpal tunnel in my left wrist.
You know when you go to the doctor and you fill out all that paperwork you have to list what is wrong with you? IE diabetes, fibromyalgia, sleep apnea, MYSTERY UNDIAGNOSED HAND AILMENT :). Yes, that is what I wrote on the form.
So, I wait. 6 or 7 weeks then I see my new rheumatologist. In the meantime, I am really looking forward to starting this aqua exercise class at the rec center by my house. Unfortunately it only goes through Sept 30th. But maybe after I will start their tai chi class. As with anything either class will require me to take it EXTREMELY SLOW. Heck, by the time I am able to complete the entire aqua class it will be over. Oh well, at least it's a start!

Wednesday, September 8, 2010

Early Signs of Fibromyalgia



Early signs of fibromyalgia

by Dr. Deborah Bauers


Fibromyalgia has been called both a disease and a syndrome. From its earliest signs through the development and duration of its more chronic symptoms it is neither life threatening nor degenerative. Its pathology does not manifest as a true disease process and yet the chronic pain that a fibromyalgia sufferer experiences can make it a debilitating condition. Its complex set of physiological abnormalities make it a recognized health issue that can create significant pain and fatigue.
Fibromyalgia is a rheumatoid-like condition that impacts the soft tissues, tendons, and muscles of the body causing exhaustion and discomfort. One of its earliest but most conclusive signs is often recognized and identified as the presence of pressure sensitive trigger points that are quite painful when palpated.  These pressure points are usually located behind the head and neck, on the shoulders, and behind the knees and elbows.
There are numerous symptoms often associated with fibromyalgia many of which can also be symptomatic of other autoimmune diseases.  For this reason, a rheumatologist or physician who specializes in treating autoimmune diseases is the best healthcare professional to diagnose fibromyalgia. Before the diagnosis can be made, blood work and x-rays must be done to rule out osteoarthritis, thyroid problems, and other auto-immune diseases such as lupus, Sjrogen’s syndrome and rheumatoid arthritis.
Earliest symptoms, together with specific  pressure points, that often suggest the onset of fibromyalgia include the following:
1. Pain in the groin
2. Difficulty climbing stairs and hills
3. Chronic sinus problems
4. Dry mouth
5.  Stiffness upon waking
6. Dry eyes
7.  Difficulty swallowing
8.  Chronic fatigue
Numerous other symptoms may occur and become chronic as an individual struggles with fibromyalgia over time.  These include:
1. Irritable bowel
2.  Headaches
3. Tingling and/or numbness in the extremities
4.  Depression
5. Bladder spasms
6. Difficulty concentrating
7. Memory loss
8. Dizziness
9. Sleep disturbances
Much controversy surrounds the origins and precipitating factors that may result in an individual having fibromyalgia.  While it was originally believed that this syndrome was largely the result of the psycho-social factors, more recent studies suggest that it may onset after a virus or illness.  Physical trauma to the body, endocrine imbalances, and deficits in the production of neurotransmitters are all being studied as possible stimuli for the onset of fibromyalgia. 
Fibromyalgia sufferers frequently experience hyper-sensitivity to certain sounds, smells, and tactile experiences and are uncomfortable in large crowds or in the midst of a lot of confusion. Prolonged exposure to overstimulation tends to exacerbate both pain and fatigue.
Overall mental health, coping mechanisms, support systems, and ability to manage stress also appear to intensify pain that is felt by fibromyalgia sufferers.  Certain personality types appear more prone to develop this syndrome and individuals who tend to be more negative in their thinking experience greater levels of fibromyalgia-related pain.
Fibromyalgia is best treated by a comprehensive plan that includes pain management, cognitive and physical therapies, and stress management techniques. Fibromyalgia sufferers must learn to set boundaries that ensure that they get enough rest and moderate exercise, while learning strategies to overcome the perception of helplessness that often accompanies the syndrome

Thursday, September 2, 2010

New Blog & Giveaway

I have what I hope is exciting news. I have started another blog. 1001 Recipes You Can Create with a Rotisserie Chicken. I hope you are as excited as I am.I like to cook. I like chicken. I like to make things easy... ok, I like to CHEAT. Seriously though, if I can buy an entire rotisserie chicken from Sam's Club, or my grocery store for $4.95 why shouldn't I shorten my prep list and time? Let's face it, most places these days you can buy a fresh rotisserie chicken for the same price, or less, as buying a whole chicken, or worse, boneless skinless chicken breasts.

So, this is my experiment into how many real recipes I can make using store bought rotisserie chicken. I say "real recipes" for one reason, and I don't mean to be knocking anyone, but during my research for the site I came across a cookbook that had to do with cooking using rotisserie chicken. At first, I was disappointed thinking, oh someone has already done this. As I read, though, I found quite a few of the recipes were simple. A simple recipe to me would be a chicken quesadilla. Remove the chicken from the bone, heat slightly. Put some of the chicken on a flour tortilla, cover with cheese. Fold the tortilla in half and brown in a hot pan. I'm not saying that's not delicious, because add a little salsa and you've got a winner with me any day of the week! Still, as delicious as that is, I wanted to make more substantial meals. 
The first recipe you will find is my Chicken & Yellow Rice. Trust me when I say it is a huge hit, and everyone I make it for loves it. On this particular recipe I used Vigo yellow rice. Since I gave a specific ingredient I linked it to Amazon as I have friends who do not have yellow rice, Vigo or otherwise, in their grocery store. The price they have for 5 packages is reasonable, if the price wasn't reasonable I would not share it with you.
The second news I hope you will find exciting is the possibility of a giveaway! I have been contacted by the promotion team of cooking website and am hoping to be able to giveaway some prizes to my readers, wouldn't that be awesome?!

Fibro Free Life, LLC Releases the First Fibromyalgia Treatment Targeting a Main Root Cause of Fibromyalgia Syndrome | Benzinga.com

****I read this several times thinking I would find the main root cause of fibromyalgia, which is why I recommended it. Come to find out this Dr. believes fibro can be seriously relieved, if not cured in 10-15 mins with a foot massage. Of course he does, he's a PODIATRIST, LOL. But seriously, wouldn't it be awesome if all of life's problems could be solved with a foot massage?? p.s. I feel it is important to note here that I absolutely HATE for my feet to be touched!



Fibro Free Life, LLC Releases the First Fibromyalgia Treatment Targeting a Main Root Cause of Fibromyalgia Syndrome


The book introduces Dr. Groshell’s expertise in integrating both Eastern and Western Medicine. Unlike many medical books, geared towards giving sufferers and the medical community a generic understanding of a health condition, East Meets West From the Bottom Up includes an extensive protocol that goes beyond learning about Dr. Groshell's medical findings. The book includes a thorough self-help, step-by-step protocol, giving patients the ability to correct their pain. Along with the self-help treatment for fibroymyalgia, comprising over forty years of practice and statistical data, East Meets West From the Bottom Up also offers raw, personal narratives from fibromyalgia sufferers, providing a more in-depth insight into one of the most complex syndromes in the history of medicine.
“My book breaks down fibromyalgia in a way that hasn't been done before," stated Dr. Groshell. "The heart of the book, though, belongs to the sufferers of Fibromylgia. Seek and you will find."
Los Angeles award-winning author Megan Rellahan (Edgar Hernandez POW: An American Hero) co-wrote the book with Dr. Groshell, spending the entire first year collecting data and interviewing former patients in order to present another rarity that you won't find in many other books about fibromyalgia -- longitudinal case studies. The correlation between podiatry and treating fibromyalgia is profound.
“Writing this book after reading and studying so many others was a very exciting challenge," Rellahan admits. "All the books I read on fibromyalgia seemed generally to say the same things. Times have drastically changed and I wanted to write something that was more modern, and with information that wasn’t out-dated. I'm so grateful to all the patients who were willing to dig deep within and talk about some of the more painful things they faced. For me, it was also incredible to see a now retired doctor so driven to push and get this information out there. His passion for his patients with fibromyalgia is something to admire, and his desire to shed a new light and give people hope, is the cornerstone of this book.”
For more information on East Meets West From The Bottom Up and for an up close and personal look at the future of fibromyalgia treatment, please visit:www.FibroFreeLife.com.

Wednesday, September 1, 2010

Panic Attacks, Anxiety, Mania, Orthopedist

Yesterday morning I started feeling jittery, like my insides were shaking. I am having the same problem today, and finding it very hard to focus to write anything. Hard to have a trail of thought let alone follow the trail!  I've taken my anxiety medication and am simply waiting for it to kick in. I'm not sure why this is all starting back up so bad. I do know I was pruning the bushes outside at 3 am. Yes, I know my husband thought I was nuts, and the neighbor's probably would of had me baker acted had they seen me. I can rationalize by saying at 3 am it's only 90 degrees, and there is no sun, so no sunburn, or rash. I knew at the time the effect pruning would have on my hands but I still had to do it. This episode did accomplish two things... First, you can walk up the sidewalk to our front door without being attacked, which is always nice. Second, the episode has driven me to finally make an appointment with a psychiatrist which I have been putting off for a few months. Procrastinate, who me?
I also made an appointment with an orthopedist for next Tuesday morning. I told the nurse about the bulging discs in my neck and the pain in my left shoulder down my arm. She said the discs do cause that pain so I think I am headed in the right direction. I asked my Facebook friends for doctor recommendations and someone recommended the Orthopedic Associates of West Florida. I went on their website and read all the doctor profiles. Dr Pigeon's profile reads "Minimally invasive spine and neck surgery, Adult degenerative scoliosis, Adult degenerative disc disease, Spinal fusions." Plus, he takes my insurance, so he was the obvious choice. I see him next Tuesday, and will keep you informed, wish me luck!

Wednesday, August 25, 2010

Not Neuropathy for sure

Well, I guess I will have to change the name of my blog. I do not have neuropathy. The nerve conduction tests were negative. Apparently the original ones I had done were too. That was a year and a half ago. Damn, I knew that neurologist I went to back then was awful. I really hated going to him because he never answered questions.Almost 2 years of my life we could have spent figuring out what the real problem was. Maybe  2 years less of suffering.
My new primary care doctor is really wonderful. Her name is Dr Brvenik. She is the kind of doctor you want to have, a real bulldog. I mean that in the best possible way. In fact, what I mean is she is the type to not settle until she finds the answer. For example, my shoulder has been giving me problems for almost 10 years. Every doctor I have told previously has brushed it off, until her. MRI shows bulging discs in my neck causing nerve pain in my shoulder down my arm, severe pain at times, just like sciatic but in shoulder down arm instead of butt down leg.
She also insisted on a full physical including pap and breast exam. Breast exam found a lump. Now, I've been through two mammograms and an ultrasound. The lump is probably just a cyst. But, she is sending me for a needle aspiration to be sure. I am 99.9% sure it is just a cyst and sure is she, but it doesn't hurt to be sure. The whole thing, having to wait over the weekend for the result of the second mammogram, set off the worst flare in my life, nothing like I have ever felt before. Excruciating pain in my arms, from the top where the shoulder joint is to my fingertips. Extreme weakness in them, and tender. Two days later the pain had narrowed down to "just" my joints. It's mostly gone now except some overall weakness from feeling so bad all week, and really bad left shoulder pain from the bulging discs.
Dr Brvenik is trying to get me in to see the rheumatologist now to be tested for lupus. The only problem she says is lupus is extremely hard to diagnose. For example, the blood test can come back false negative, and often does. I know I was checked for it at some point. Either 3 years ago or 10 years ago. And, it was negative then, but could still be positive now. I don't even know what lupus means, except I know that one of the first signs is inflammation in the knuckle area of the hands. That I've had forever, years, like 7-10 years, before the pain started. I had it so long I just thought it was some odd quirk since there was no pain.
So, Friday will be a big day for me. An appointment with the hand surgeon for a consult regarding carpal tunnel in my right hand, an appointment with the general surgeon for a consult to have the breast needle thing, and an appointment with the orthopedist for the bulging discs in my neck.
Wish me luck!!

Friday, August 20, 2010

Big Day Nerves

Tomorrow is a big day, guaranteed no sleep tonight. Start the morning off with a spot mammogram. If you don't know what that is it's a magnifying mammogram (I had to ask :) ), then possibly an ultrasound. My husband has to work so my best friend is taking me. Probably better, he'd keep asking "what's wrong?" and say all the absolutely wrong things. He tries, and he means well. After the mammo I will send her off to work, then off to the neurologist for my mri and emg results... more fun. I'm hoping he will have a definite positive yes or no this is neuropathy or it's not and they keep looking. From the previous neurologist I know I will need carpal tunnel surgery, but that's ok, I just don't expect it to fix everything though. That may sound pessimistic, but it's not. My reasoning is because the pain in my hands is the same in my feet and toes, and I know THAT'S not carpal tunnel, lol.
oh well, I guess I should try to lay down for a little bit.

Wednesday, August 11, 2010

50 Fabulous Food and Recipe Links For Diabetics

A reader named Bobbie sent me a link to this article. I haven't had time yet to really delve into it, but I thought I would share anyway, it looks like there is a wealth of information.


As a nurse, you will definitely encounter patients with diabetes. In fact, according to the American Diabetes Association, over 23 million people in the United States have been diagnosed with diabetes. This doesn’t count all the people who haven’t been diagnosed or who are at risk for diabetes. Diabetics need special guidance when it comes to diet and nutrition. Luckily, the Internet has made it easy for diabetics to access healthy, delicious recipes as well as learn about their condition and the way they should eat. Here are 50 fabulous food and recipe links we’ve found around the ‘Net:
Diet and Nutrition Infromation
These websites provide general information on a proper diabetic diet. Learn about different types of diet plans that diabetics use to manage their sugar intake.
    1. Januvia : Merck’s Januvia website has good tips about healthy food for managing diabetes, as well as a recipe tool and favorite food analyzer. Free registration required to access some tools. 2. Simple Wins: Nutrition : The Bayer website has nutrition tips, healthy cooking videos, and other good resources for diabetics. 3. Tudiabetes.org : Tudiabetes.org is a great resource for anyone with diabetes, combining the wisdom of a large group of diabetics with excellent articles. 4. ADA: Food & Fitness : Learn about proper nutrition for diabetics on this website of the American Diabetes Association. 5. MedlinePlus: Diabetic Diet : Medline Plus’ website gives simple, easy-to-understand information about the proper diet for a diabetic person to follow. 6. X-Plain: Diabetic Meal Planning : The X-Plain interactive tutorial gives you tools and information on planning healthy meals. 7. Accu-Chek Connect : This page provides supportive information for diabetics who feel they need help with their eating habits. 8. MayoClinic.com: Reading Food Labels : This helpful article tell diabetics how they should read food labels in order to make the right choices. 9. Reader’s Digest: 10 Super Foods : This attractive slideshow features 10 foods that diabetics should incorporate into their daily diets. 10. BD: Fast Food Guide : BD Medical Supplies offers this extremely helpful guide to your favorite fast food restaurants from a nutritional perspective, so you can see just what you’re getting into. 11. Foodpicker.org : Foodpicker.org follows the guidelines of the American Diabetes Association in order to help diabetics make better food choices. 12. Buffet Tips For Diabetics : The National Institutes of Health offers this article to help people make the right choices when offers with a whole buffet of options. 13. Joslin Diabetes Center : The Joslin Diabetes Center offers great tips on keeping portions controlled, as well as other healthy eating strategies. 14. Joslin Diabetes Center: The ABC’s of Sugar Substitutes : With all the sugar substitutes available on the market, it’s easy to get confused. This article compares sugar alcohols and artificial sweeteners. 15. Mayo Clinic: Exchange Lists : Learn how diabetic food exchange lists work to help you stay on the right track with your eating plan. 16. Ready, Set, Start Counting! : An easy-to-read guide that teaches patients how to count carbohydrates in a healthy diabetic diet. 17. Diabetes Fact Sheet For Child Nutrition Professionals : This article provides guidelines for food service workers who work with children that may be diabetic. 18. MyFoodAdvisor : The American Diabetes Association provides this excellent website with tracking tools, recipe finders 19. WebMD: Diabetes Center : Learn all about the basics of a healthy diet for someone with diabetes. 20. The Exchange List System for Diabetic Meal Planning : The University of Arkansas Family and Consumer Sciences department provides this helpful guide to using exchanges for nutritional management of diabetes. 21. The Idaho Plate Method : The Idaho Plate Method is used to help teach diabetics about proper portion control and correct nutrition. 22. The DASH Plan : The DASH Plan is designed to help people who have hypertension, or high blood pressure. 23. Treatments For Hypoglycemia : This web page gives examples of foods and quantities of food you should eat if your blood sugars get too low. 24. Eating Healthy On A Budget : This page gives you simple strategies for planning your meals without spending too much money on food. 25. Fruits And Veggies Matter : The CDC’s website encourages people to eat their fruits and vegetables for better health.
Recipes For Diabetics
These links will give you access to thousands upon thousands of recipes for diabetics. Some websites rely on user-generated content, so the nutritional information may not be exact.
    26. Top 20 Diabetic Recipes : Allrecipes.com is the favorite website for millions of home cooks. On this page, view the 20 most popular diabetic-friendly recipes that have been submitted by home cooks. 27. Recipes From MyFoodAdvisor : This link features recipes searchable by calorie content, carbs, fat, and other nutritional data. 28. Diabetic Gourmet : Diabetic Gourmet Magazine has literally thousands of diabetes-inspired recipes in every category from appetizers to desserts–even breads! 29. MayoClinic.com Diabetes Meal Plan : Delicious recipes featured on the Mayo Clinic website included chipotle-spiced shrimp and almond-apricot biscotti. 30. dLife : dLife has a selection of hundreds of “diabetic-approved” recipes that you can search by carb content, main ingredient, course, and other options. 31. Type 2 Diabetes Guide on About.com : The Type 2 Diabetes Guide on About.com has links to several different recipes for your enjoyment. 32. Diabetic Living : Diabetic Living, part of the Better Homes and Gardens network, is a site that includes many tips for healthy eating and recipes that sacrifice added sugar without losing flavor. 33. Bob’s Diabetic Recipes By Category : Bob’s website may not be pretty, but it sure has a lot of diabetic recipes! 34. Dave’s Garden : Dave’s Garden is a recipe site that has 72 user-submitted diabetes-appropriate recipes. 35. Diabetic Recipes : Over 800 diabetic-friendly recipes are included on this website, including menus for special occasions and foods that kids will love. 36. Kraft Good Eating, Good Living : This free website from Kraft gives registered users access to recipes tested by Kraft nutrition experts as well as money-saving coupons and recipe videos. 37. Meals For You : Meals For You has been providing over 6,000 nutritionally based recipes online since 1996. You can search meals by several different categories and view nutrition data for each one. 38. NewWellness: Crock Pot Recipes : This website has many diabetic-friendly recipes that feature a slow cooker. This way you can start dinner in the morning and have it finished when you get home from work. 39. CookEatShare : CookEatShare has over 1000 recipes for people with diabetes. Watch cooking videos and share your favorites. 40. EatingWell : EatingWell emphasizes the fact that diabetics don’t have to exclude certain food and they don’t have to sacrifice taste. By eating fresh, wholesome ingredients, they can eat healthy and feel indulgent. 41. ADA: Recipes : Access many delicious recipes that are sure to keep you eating right on the ADA website. 42. Food.com : At Food.com, you can find over 9,000 recipes that have been tagged “diabetic” by users. These have not all been reviewed by a dietician, so they are not guaranteed to be low glycemic. 43. ChildrenWithDiabetes.com : Cooking for kids can be hard in and of itself, but when you have to please a diabetic child, it can be even more difficult. 44. RecipeSource : RecipeSource has a wide variety of recipes for diabetics, over 700, in fact. Search by keyword to find your favorites. 45. Easy Diabetic Recipes : This page has a lot of advertisements, but it also has links to many recipes for diabetics as well as photos of the food. 46. Tasty Recipes For People With Diabetes and Their Families : This 31-page free eBook from the National Institutes of Health is jam-packed with healthy recipes, many with a Latin flair. 47. Recipe Trove: Diabetic : Recipe Trove features three decadent desserts that diabetics can enjoy in moderation. 48. Cooks Recipes : Cooks Recipes features over 100 recipes for low-sugar and low-carb breads and muffins on their website. 49. Dreamfields Pasta : Dreamfields Pasta has resources for pasta dishes that diabetics can safely enjoy. 50. OpenSource Food: Diabetes Diet : This website features good links to diabetic recipes as well as tips for diabetics who are trying to eat healthier.

Sunday, August 1, 2010

I Scream, You Scream, We All Scream...

I've had the best time the past few weeks creating ice cream concoctions for my cousin who had jaw surgery. Can you imagine not being able to eat solid food for 90 days?? count me out! I went through something similar years ago when I had jaw surgery for TMJ, but I my recovery time was much shorter, even though I had a hell of a lot more swelling, and am darn irrationally jealous of that! As usual I digress
I was saying my cousin is enjoying the ice cream. Plus, she told me the cold from the ice cream is the only thing providing her any relief from the pain. She's a really tough cookie, the backbone of a family of 7 kids. She's the oldest and acted as a second mother to her younger siblings through some very tough times. It has been very hard to see the strongest person in my family so weak and in pain. I am very glad I moved home just in time to be here for her.
I found a few really great books for ice cream recipes. My favorite one is called The Perfect Scoop. The book not only provides recipes but quite a lot of detailed information. I checked it out of the library but I'm going to have to buy my own copy, it's too valuable of a book, information wise, not to if I plan to keep making ice cream, and frozen yogurt. Not to mention there is a recipe in there for some kind of frozen mojito that I think is going to require a girls night with my best friends.

Monday, July 26, 2010

Strawberry Shortcake Ice Cream Recipe

I've been wanting an ice cream maker for forever. Our grocery store, Aldi, had one last year for $20. They are offering it again this summer. My best friend bought one and is keeping it at my house ( :) ). I try to have her and our other best friend over for dinner every few weeks. Everyone can use the ego boost those two women can give someone with the fawning they do over my cooking. Last time I made chicken cordon blue burgers and home made french fries. The burgers are simple I took my basic chicken burger mixture, ground chicken, grated zucchini, and a little salt. Made patties, and put them on the George Foreman. Once they were mostly cooked I added a slice of baby swiss, and a slice of ham. I bought crusty rolls from the bakery covered them with honey mustard and a slice of fresh tomato. They were good.
I like to cook but I also realize I need to make things I can do ahead of time or are simple. Tonight's menu will include a simple iceberg lettuce wedge salad with doctored blue cheese dressing, pork chops, and pesto risotto, and strawberry shortcake ice cream. The pesto was made and frozen a few weeks ago, the blue cheese was doctored Saturday night, and the shortcake was cubed and frozen then also. I just made the ice cream, yes at 4:30 a.m. The pork chops will be simple salt, pepper, garlic, olive oil and a frying pan. Risotto is easy too. Granted, I have to pull my stool up to the stove to stir it for a while, but it's simple.
Back to the ice cream maker, it is an electric one that doesn't require ice or salt. I have made chocolate, chocolate raspberry, vanilla with cherries and chocolate chunk, and now the strawberry shortcake. I have made most of them with splenda, except the chocolate. And, most of them I made for my cousin who just had jaw surgery, I haven't really eaten any myself yet. My husband tasted the strawberry shortcake ice cream before he left for work and swears it's better than sex. He, and my cousins, also swore the chocolate was the best chocolate ice cream they ever ate. Let me know if you want any of the other recipes.

Strawberry Shortcake Ice Cream

16 oz fresh or frozen (no sugar added) strawberries
1 cup plus 1/2 cup splenda, divided
1 cup heavy whipping cream
1 cup 2% milk
2 eggs
1 cup shortcake, cubed, then freeze

In a blender put the strawberries and 1/2 cup of the splenda. Blend to puree.In a bowl whisk 2 eggs, add splenda, cream, milk, and strawberries. My machine requires you turn it on and pour the ingredients in the spout then let the ice cream maker do it's thing for half an hour. After half an hour add the shortcake cubes. Stir the cubes in well then freeze the entire mixture to harden (ice cream comes out of the machine in a soft serve type consistency).

Finally

I think I may have finally found the doctor for me. I searched for someone who was top of their class and young. Young was important. In my experience older doctors, even those in their mid forties, and up are not the go getters younger doctors are, nor are they necessarily up on current medical. My last doctor was a family practitioner but also a, oh heck what is that word??? a doctor who specializes in senior citizens. The term will come to me eventually. In the meantime, I really like this doctor, she is determined to figure this mess that is my health out. And, she's not assuming everything is linked. Like my shoulder has been giving me problems for wow about 10 years, since before I was diagnosed with fibro.  But, every doctor, and me too, has always assumed the shoulder was part of the fibro.
In the next month she has me seeing a orthopedic doctor, a neurologist, a rheumatologist, a nutritionist, and a psychiatrist. Plus, a physical, and a mammogram. She wants me to have some test also, but I have to see if it will be covered for my insurance. It is the test for the genetic marker of breast cancer.
She did mention lupus, which this is not the first time I've heard a doctor say that word. I'm not losing any sleep over it. I had a few years ago and it was negative. Although, I understand from a few friends who have lupus it is not uncommon to have a negative test and still have lupus. I will have to let her know how sick I get whenever I spend any time in the sun. I rarely do so I hadn't realized how sick it made me. We went to a water park a few years ago, when I worked for Disney we had a work event one evening, it was such a blast! (not that I can do anything other than the lazy river or the shallow end of the wave pool) Anyway, I was in so much pain and fatigued afterwards. Then in the past few weeks I have been to the beach and a pool party. Both times I again got incredibly ill. I googled pain, fatigue, and sun exposure and up popped lupus. Plus I get a rash on my head, and lupus can cause swelling and pain in your joints, the first sign is in the knuckles. I am still not worrying about it. I probably sound like a hypochondriac, it's just a possible answer to this mess, I mean the RA tests are negative, 2 neurologists have said neuropathy, 2 have said not. There has got to be some definitive answers some where!

Thursday, July 8, 2010

email: Post Stroke Nerve Damage

I received a lovely email today from a man who I will only say his first name is Ray. I have received several emails previously, from other people, and today I wondered why I'm not sharing them with you. Ray writes:


"Hi: 

I will be 60 next month and have had type 1 diabetes since 1 was 10. Up until 2 months ago my life had been fairly routine..well I had a heart attack in 1998 but fine since then. That morning was very routine.. but I passed out with no warning while turning on the TV and landed in a chair thankfully. Approximately 3 hours later I was conscious enough to know that I needed to call 911.. but I could not walk as my legs felt paralyzed. I crawled to the phone, crawled to the fridge to get some OJ while talking to the 911 operator and then had to crawl down 4 stairs and through the front hall to open the door for the paramedics.
They treated me for low blood sugar and by the time my blood sugar was up I was able to stand, although my calves felt like hard bricks.  I should have gone to the hospital then, but I declined, assuming it was a blood sugar related incident.
When I went to my doctor the following week he said it could have been a mini-stroke ( a TIA ).  I got a CT scan done..it showed nothing. I am still waiting for the MRI results to confirm or deny the stroke aspect.
In the meantime I have been enduring an off balance sensation when standing and I do not walk the same as I used to. A tingling,burning,and well some pain too, mainly in my back but also in my left leg and foot. I have gotten some physio and it seems to have helped somewhat. I am self employed and play trumpet in 3 bands ( well I did until this ). My back aches terribly if I try to play.
Some days are not as bad as others but I do feel frustrated and a bit inadequate as my wife looks after most things around the house now ( I can still mow the lawn on a good day but just slowly ). I still drive, work etc. but things are not the same. I feel as long as each day is marginally better that things will be okay."

I really admire Ray's positive attitude. To me, the tingling and burning sounds like neuropathy, but of course I am no expert. I have read though that 8% of stroke victims have nerve pain after a stroke, so post stroke neuropathy is not uncommon. 
I understand, and I'm sure if you are reading this and suffer from a debilitating illness you do also, Ray's frustration and feeling inadequate. Being unable to manage simple tasks you used to be able to do can cause severe depression and anxiety. For me, I have quite a hard time with anything that requires my hands, and let's face it EVERYTHING requires your hands, but especially fine manipulation. Things like removing the battery case from a cell phone, removing saran wrap from the roll, jewelry clasps, opening soda bottles are simply impossible. And, I drop a heck of a lot of glasses! 
As always, feel free to drop me a line at alonelydragonfly@aol.com & I will try to find some more of these emails and post them so you know you aren't alone.

Wednesday, July 7, 2010

Strawberry Salad Recipe

This salad reminds me of a family favorite. My cousin Marlene made it for a family picnic and it became an instant hit. Her recipe had a crushed pretzel crust and no pineapple but I believe the rest is pretty similar.(oh her's wasn't in a ring mold either)

1 large package sugar free strawberry jello
2 cups boiling water
10 ounce package frozen strawberries, no sugar added
16 oz can crushed pineapple in it's own juice (not syrup)
1/2 pint sour cream

Dissolve gelatin in boiling water. Add strawberries and pineapple, include juice. Fill a ring mold with half the mixture and chill for 30 minutes. Add layer of sour cream. Pour the remaining gelatin mixture on top. Chill until firm.

8 servings

Tuesday, July 6, 2010

Feeling stupid

I'm going to tell you this as if it happened today when in truth it happened last Thursday, although the embarrassment and stupidity I felt still lingers. Thursday morning I had an appointment with my new neurologist, a rather important appointment, thus. I live about 1.3 miles from the doctor's office and had decided to take the bus, a mode of transport I have not yet used in my 42 years of life. I could have driven my husband to work at 4 a.m. (1/2 an hour from here), or borrowed a car from my mother in law, or even asked my best friend to take me, but that all seemed silly, I mean it's only a mile for goodness sakes, and I'm a fairly independent woman, or at least I used to be.
To say I have sleep problems would be saying that the fact I have not slept yet and it is 8 a.m. is normal. This normal occurrence, for me, is especially true the night before a doctor's appointment, as I am always afraid I won't wake up in time. This particular Wednesday night / Thursday morning was no exception. About 5 a.m. I realized I may be having more problems than the normal, and should have taken a xanax earlier. By 7 a.m. I was in full on panic attack mode at the thought of taking the bus. I'm only traveling on the bus roughly 5 minutes, but how do I let the bus driver know when I want to get off? The bus is not like the subway, it doesn't stop at EVERY location. My husband tells me there is a cord to pull. Ok, I can pull a cord, but when do I pull it? He tells me after the previous stop to when I want to get off. How do I know when I'm at the stop prior to the one I want?
Truthfully, I can't believe I'm writing this down, sharing it, putting it out there for the entire world to read. I was in one of the worst panic attacks of my entire life over a bus ride. I couldn't breathe, I started vomiting. I had to call the doctor and reschedule. Like I said I still feel extremely embarrassed, stupid, and even ashamed.
To make matters more absurd, and this may surprise you, I used to be a pilot. A single engine, and multi engine pilot. Not only could I fly, I was licensed to teach OTHERS to fly.
I have an appointment with my regular doctor this Thursday. Trust me when I say I already have my best friend lined up to take me and I also have my husband lined up for a "bus lesson". Yes, a bus lesson. He will take me on the bus, we will ride it to where I need to get off for the doctor's offices, then get back on where I will catch it home. I'm terrified. The funny thing is I was sooooo excited about the bus and the new found freedom I could have (I found the route to the mall and I don't even have to change buses :) ), oh well, maybe someday! (or maybe someday I can convince my husband I do have good enough balance for a pink scooter!!)

Chicken Spread Recipe

I found this recipe in a diabetes cookbook. It reminds me of a chicken spread my Mother used to make once in a while when I was growing up. However, she used a whole chicken and put the chicken in a grinder attachment to possibly her mixer, but in a grinder, nonetheless.Then, the mixture was put in a loaf pan and patted down.

Chicken Spread
1 lb ground chicken
1 small onion, minced
1 tsp garlic powder
1 tsp basil
1/2 tsp thyme
1/4 tsp salt
1/4 tsp black pepper
1 tbsp apple juice

Saute the chicken, onion, garlic, basil, and thyme in a medium skillet over medium heat, until browned. Cool. Add salt, pepper, and apple juice. Mix well, using food processor or blender if a smoother texture is desired.Cover and chill for several hours. Serve on bread, crackers, or toast.

6 servings, 2 carbs

Tuesday, June 29, 2010

How to Cope with Sudden Illness or Disability by Martina Roe: Parts 6 & 7

6. Try to eliminate stress from your life
As we all know stress contributes greatly to many illnesses. Stress in small dosage is useful but on a large scale can be very negative.
When our body senses danger it prepares to flee in which case our heart rate increases. If we experience such states too often our health suffers as a result. The slower our heart rate the longer our life. Breathing exercises can help us calm down influencing our heart in a positive way. Take deep slow breaths to the count of 5.
Are you breathing properly? Let’s make a test. Stand or sit straight in front of a mirror. Take one deep breath and watch yourself.
Did your shoulders move up? Then you are not breathing properly as you are breathing through your chest and not through your abdomen. Now put your hand on your abdomen and take some more breaths. Can you feel your hand move up and down? Then you are breathing correctly. Try and practise this deep breathing exercise each day for a few minutes. You will then start to adopt such breathing automatically throughout the day.
If you find it difficult to sleep then deep breathing can also help you to relax and go to sleep. Sleep is naturally very important. Try to go to bed and get up at the same time each day ensuring that you have at least eight hours’ sleep.The need for the length of sleep will naturally vary from individual to individual. Try to free yourself from all worries or any anger, relax the hour before going to bed with a gentle music or a book, anything which will help you go to sleep better. Do not watch television just before going to bed and if at all possible, have your bedroom television free. Just think how parents put their small children to bed. They pamper them with a bath and once they are nice and cosy in bed they read them a bedtime story or sing a lullaby. We know it works for little children but we do not apply it to ourselves.
We should try and live in harmony with everybody else. This might not always be easy. I know myself that the relations in our neighbourhood are rather tense. When I consider my family there is always an argument of one sort or another going on. The neighbours in our road always fight for parking spaces, especially during the weekends. One day our neighbour could not find a parking space so she parked her car in front of her garage but at the same time blocked an entrance to our second neighbour’s garage. He did not like it and asked her to move the car. At the end they started to argue. The arguments ended up in violence with the police having to be involved.In such arguments it is difficult to judge who is to blame because both parties are equally guilty, but the lesson to learn is not to get involved in such arguments or learn how to deal with them constructively. If you are angry with somebody take a few deep breaths and explain calmly to the person why you are angry and what you would like the person to do instead. Do not swear at anybody or accuse them of being an idiot, the response you will be getting should be less hostile. Write down on a piece of paper something similar to the following quote.
“I can express my anger, irritability or rage politely and effectively. It does not matter who with or what the issue is.” Do not forget that if you can’t do so it is likely that you are constantly increasing your blood pressure which is not good for your heart.
Our neighbour has learnt a lesson not to park in front of the other neighbour’s garage. Sometimes it is better to avoid conflictive situations even if it means an effort. In the case of our neighbour it is the inconvenience of parking her car a bit further away from her house and having to walk slightly further. But then walking is healthy; she might even be doing something for her health. Actually she is doing rather a lot of walking at the moment because she was drink driving and had her licence taken away from her for a year.
When it comes to arguments and judging people I like to become non judgemental. Our neighbour no longer lives next to us but I have remained a good friend of hers. She has supported me incredibly well when I was at my lowest and all I am doing is praising her for that. She might have some faults but then we all do, and often it is impossible to put ourselves into other people’s shoes and understand why they behave the way they do. Before I had my own children I sometimes used to see children who were really naughty, full of tantrums in the streets, and could not comprehend how their parents could let them behave in such an awful manner. But when I had my own children I finally realised that even they have their difficult moments. In such situations I would say to myself that there must be others who are judging me in the same way as I used the judge the parents of the naughty children.
New information and communication technologies are making our lives easier and especially people who are not very mobile benefit greatly from these. But there are naturally some very negative features. As well as encouraging a less healthy and more sedentary lifestyles modern technologies take the human touch away from us. Children find it more difficult to interact with each other when they spend hours on the computer and many families now are deciding to have their home computer and television free as it makes their family lives more stress free. Children might resist such idea first but later they become more creative and can interact better with their parents, siblings and friends. It might be an idea to review your use of modern technologies and possibly restrict their use, if at all possible. It is always nicer to meet your friends in person than just send e-mails to them.
I have also found that prayers can help you have a positive attitude and keep you peaceful. They work very much like hypnosis; you believe there is some higher spiritual being that is helping you overcome your problems. As a child I grew up in Prague under the communist regime. At that time you were not allowed to practise your religion and only could do so in secret. My family went to Church on Sundays, but because discussing matters was also not on the agenda under the communist regime, I never quite understood the concept of God till I was in my teens. By then the communist regime was breaking down. Since then I believed sometimes very strongly but I also, like everyone else, had my doubts at other times. When I feel better, I believe in God strongly, but when I feel ill, I can doubt his existence. Yet I know this is somehow wrong. You yourself might be going through very similar mixed feelings. But I am always assured that God will be there for me even if I doubted him that he will forgive me and be there for me even though I might occasionally doubt his existence. I once assembled some prayers and put them on a website. One energy healer said to me that the prayer page was full of energy. His comment reassured me that with good intentions you would always be surrounded by positive energy.
I pray simple prayers every day, just keeping it simple, thanking God for all the great things he gave me, teaching me to get on well with everybody else, not to bear a grudge against anybody. I have learned that God is inside each one of us, but it depends on each individual how much we actually notice him. Praying is all about making you a happier, healthier, wealthier person. It can also help you go to sleep.
It is also well known that people who worship God regularly live healthier, longer and happier lives. It is often the social contact and support from church members that contribute to this happiness in great amount. But beware of sects, who in God’s name want to create evil, they recruit people and especially those vulnerable ones will say yes. If you know the Bible well and all God’s teachings the sect member will not bother you. I remember after the fall of the communist regime the Czech sects that were until then forced to practise in secrecy, were recruiting their new members. Once my father invited them in because he did not know who these people were. When the cult associates found out that my father knew the Bible well, they left very quickly without bothering him ever again.
Learn how to breath well and practise deep breathing exercises
Relax before bedtime ensuring you get enough rest, going to bed and getting up at regular times
Learn how to live in harmony by learning how to express anger in a constructive way
Prayers can help you to live a stress free live as well as giving you hope and believe in yourself.

7. You are the maker of your own luck


Right at this moment you might be thinking that it is not in your power to improve your life in any way. Let me tell you that even if you think you have very little left there is still so much strength in you which you are not aware of and that I would like to help you discover.
The main clue to success is to start small, giving you manageable goals each day that will build on each other. Break your tasks into smaller chunks if your challenge is slightly larger. Many people make the mistake that when they have a brilliant idea they think big and want to see success overnight. I would never manage to write these strategies in just one day, I get tired quickly and have to rest but at the end I shall complete it if I write a little every day.
My son thinks he will be able to swim easily to the other side of the river. When he is in the middle, however he has to return because he is out of breath. He will manage it one day but must pursue his goal and practise swimming each day a bit further.One day his stamina will improve to make it all the way. He also wants to write series for television. But he does not realise that before aiming so high he has to have small success first then work hard for the big success. He would be much better off if he considered entering competitions of creative writing for his age group first. But at this moment he can only see fame, he cannot understand he has to work really hard to get to the top.
It is therefore important to take one step at a time. If it is an effort for you just to get out of bed and make breakfast perhaps this could be challenge number one for the rest of the week to get up by a certain time. Gradually and slowly add a few extra challenges as you go along. A the end of each day or week make a review of what you managed to achieve that you could not do previously. You could perhaps keep a diary and set yourself some targets for the day and review them later. I find keeping a diary very useful with my son. As the majority of children of his age he finds it difficult to plan his homework leaving them often till the end when there is not enough time left. The diary helps him to monitor what he has done and what he still has to do but it gives him also this essential skill of planning and organising his day so he does not spend the whole day on the computer.Keep on reviewing your tasks and challenges and make sure that you do not set yourself too tough challenges which you then feel disappointed because you have not achieved them. Rather slightly adapt your challenges and make them easier, or if your tasks were too easy, set yourself more demanding goals. And do not be a perfectionist; it does not matter if the house is not absolutely 100% clean.I have got a friend who is always so worried about things going wrong when she invites her friends for dinner that at the end she is so stressed and exhausted. Friends are there to cheer you up, not to make you feel even more awful, they will most certainly not mind if everything is not absolutely 100% perfect. Do not therefore worry about things going wrong or that anything is not perfect.
If you want to work I believe you can find a job that suits you, will be enjoyable and will give you satisfaction. Ill or disabled people often feel depressed because they feel they cannot contribute to society as much as others. Companies are often discouraged from employing people with disabilities because they fear that such people will be absent regularly and not be as efficient as others suffering loss as a result even though by law employers must not discriminate against employees with disability. There is help at hand for you as there are organisations that will help you find a job that is suitable for you with training for the appropriate job. You might also enjoy other benefits such as reduced alternative therapy treatments, or start up money packages if you think of running your own business. Explore all that is available of which you can take advantage.
As mentioned previously it is important to think small.You might feel others have got an easy life and can prosper well without having to fight an illness or disability every day. First let me assure you that even the people who appear to have no problems can be flooded with them. I know you feel like you are a victim, but it is important to think of yourself as a winner or becoming one. Do not compare yourself to others. We are all unique individuals with different experiences, values or beliefs. If your neighbour was disadvantaged like you would he or she have achieved as much as you?
You might still feel uneasy about the whole situation saying you are too ill to do any work. That is exactly how I felt not so long ago. The nature of my illness is such that I would not be able to turn up for any regular work. I have so much skill and ability yet I cannot use it even though I very much want to do something. I started to think whether I could work for myself on a self-employed basis. This would mean I could work when I feel a bit better and when I feel unwell I can just take it easy and relax. I speak and write 6 languages fluently so I could possibly do translations. Everyone around me is discouraging me because they believe it is a job that is not very financially rewarding. Yet I am not discouraged and am determined to work hard for it; most translation agencies only accept people with 3 or 4 years experience. But that does not discourage me. I am in the meantime translating adventure stories my uncle published in Czech after his journey to South America into English and this should give me some experience in translation.If I were healthy, I would naturally aim higher. It is nevertheless a great challenge for me.
Do not look for any reasons which would be stopping you from pursuing your realistic coal. People manage to find all kinds of excuses for things they have not done and should have done. As I am writing these strategies my life is certainly not straightforward. Yet I believe that tomorrow will be a better day and I will be able to continue and help great people like you achieve your dreams and be happy. I know things were tough for me and it took me a long time to finally find the right path. If I had a chance to read something similar to the 7 strategies I would have appreciated it very much and I hope that what you are reading is beginning to change your life for the better.
It is important to go only at a pace you are comfortable with. While you are patient and waiting for your dreams to materialise you are obviously doing all the right things that will help you to achieve your goal one day in the future.
In the past I watched films, where people who were involved in accidents causing them serious injuries made an incredible comeback.I always used to admire their strength and wished nothing of that nature would happen to me as I felt I would not be able to cope with it.Yet without this incredible strength such people would have no life at all.People who are blind develop all their other senses much better than we do, otherwise they would have to live in total darkness and isolation. I just wanted to show you that this incredible strength is in all of you and you have the capacity to use it to improve your life and the life of those around you. And do not forget - it is those around you who also help you enormously to pull through your difficult moments. One lady who became ill said there was not point for her to live on because she could not do what she was hoping to achieve. She just started to work in a nursery and only recently completed her course. But her family assured her that there is live for her only if she remains positive and that they are there to help her pull through it. Even though she can no longer work and has to rely on her family to help her she is happy because her family are there supporting her, she keeps herself positive and focused and is very proud of her children who learned to help their mum as much as possible.
If you think there is no such strength within you to change live for the better I am going to prove you wrong. On one sheet of paper write down all the negative aspects of your life, on another sheet reflect on the positive ones. Weigh them all up. You probably wrote more negative stuff quickly while the positive stuff only came up very slowly. Never mind, this is all about appreciating the entire positive side of your life now. The negative parts are hard, but throw the negative sheet in the bin. As you do so, imagine all these problems are locked up in the bin now and when you take the rubbish down to be collected imagine they are going with all the other rubbish into the landfill site. Every time the negative parts re-appear in your life try to imagine them going into the bin and away with the rest of the rubbish.
Let us instead concentrate on the positive now. If you only managed to write down very little let me help you to think of some more. When you are not feeling too good, it is difficult to see all the positive side of your life. But do you have a supportive family, a circle of friends, can you read, write, have access to the Internet, can you walk or have enough strength to push yourself in a wheelchair? If you have some of these you will be able to pursue your interests – perhaps studying something you enjoy, you can join like-minded people on the Internet or you can write about your problems and share your experience with others. To write about what bothers you helps and you never know your articles might be great and appear on websites for which you will earn some money. Nowadays there are so many opportunities thanks to the Internet, especially for people who are ill and disabled and cannot go to work on a daily basis. I always felt people with disabilities were so much closer to God and artistically gifted – they have the time to notice little thingsthat busy people cannot. I am sure you have heard of artists who paint with their legs or their mouth and their paintings are truly marvellous. Would they have not had their disability they would probably get on with their everyday lives and they would never have discovered this special gift in them. There is a special gift in everybody and even you can discover it and make good use of it.
If you cannot continue in your current job or cannot achieve your career ambitions help those around you who will certainly appreciate your input or expertise. Or help those who are facing similar problems like you. If you have children help them to achieve their potential. They will appreciate it greatly and it will be a consolation to you that they will do well and may not only fulfil but also eclipse your hopes and dreams. Let them, however, decide for themselves what they would like to do.
If you stick with your realistic goal you will achieve it. Also do not always listen to your prospects that have been forecasted by doctors for the development of your illness. As mentioned earlier the same illness can behave differently in various individuals. If you were forecasted that it would probably be 3 years by which time you would be in a wheelchair do not fix it in your mind. Rather try to be positive and keep walking as much and as regularly as you can. The longer you keep it up, the longer you can do it. I have heard of people who were told by their doctors that their illness was not curable; however, they even adopted a different approach to treatment than suggested by their doctor and have cured their illness even though their doctor has given them only a few years of life.
You can achieve your goals
Think small; accept that you will have some bad days. Find ways how to overcome these and say tomorrow will be a better day
Break bigger tasks into smaller chunks
Stick up with your goal – do not give up
It is now exactly a year ago since I wrote 7 Strategies how to cope with illness and disability. Since then my live has improved even though the first 6 months of this last year were the toughest of my live. I am afraid during these 6 months I have completely forgotten about these 7 Strategies and somehow never believed I would ever get better. But I did, perhaps because unconsciously I had these Strategies in my mind.
In the last couple of months I even started to work as an Invigilator, something I never dreamed I could do a year ago.And I am also thinking of helping out at my sons’ school, I could use my skills and help perhaps some students prepare for their French or German exams. I am still thinking about becoming a translator one day but I have other very exciting plans as well. I see my life as very rich; I do so many different things I could not do if I had to work every day and doing the same thing over and over again must be boring. Well a couple of years ago I thought that being unable to go to work is the worst thing that can ever happen to anybody.
It is the belief which is very important. Just try to say the following in your head, “Life is very hard, life is very hard”. Then relax, take some deep breaths and note how you feel.
Now do the same exercise again and instead of saying that life is hard, try and say something positive, such as, “I can take steps to make my life better and happier.” Now relax again, take a few deep breaths and notice how you feel.
I am sure you felt better when you kept telling yourself that you can take steps to make your life better and happier.
I hope that you found reading the “7 Strategies how to cope with illness or disability” enjoyable and useful and that over time some of these strategies if not all will help you to improve the quality of your life and make you a happier person. If you are in doubt about anything please consult your doctor, especially if you want to embark on any new exercise, diet or treatment regime. I wish you all good luck.